What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Matthew Pickering 05:37. 2 Value to whom? 07:48. 3 Moving from volume to value 11:37. 3 Quality and cost measures help choose plans and providers 13:41. 4 Consumer seats at the table 15:06. 4 Cost, is it real? 17:09. 5 Measures inform and inspire, don’t they? 22:27. 6 Cost is different. Smoke and mirrors? 25:23. 6 Do consumers use this cost and quality information? 27:45. 7 Who would want to sit on this cost committee? 30:51. 8 Participating 34:33. 9 Reflection 36:40  10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from John Shaw, Danny Sands, Cynthia Cullen, Ellen Schultz, Janice McCallum, Michael Mittelman, Edwin Lomotan, Lacy Fabian, Michael Millenson, Amy Price, Tania Dutta, Uma Kotagal Sponsored by Abridge Links Matthew Pickering LinkedIn National Quality Forum (NQF) Cost and Efficiency Measure Standing Committee Better Ways to Cut Healthcare Waste What Is Value-Based Healthcare? New England Journal of Medicine PCORI: Patient Engagement CMS: Person and Family Engagement Related podcasts and blogs https://health-hats.com/zen_relationshipcentered_measure/ https://health-hats.com/pod137/ https://health-hats.com/infodemiology-too-much-not-enough/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem If a grocery store, car dealer, hardware store, eBay, Amazon charges $100 for something, how much does it get paid? $100. If a healthcare provider (doctor, physical therapist, clinic, hospital) charges $100, how much does it get paid?  It depends. It depends on the type of insurance, type of patient, service type. Type of insurance might be Medicare, Medicaid, private, none. Patient type means young, old, tall, short, full head of hair, bald, parent, grandparent, child.  No, that would be too easy.  It has nothing to do with the patient. It’s about the relationship with the clinician - acute episode, continuous relationship, referred by another clinician, etc.). Specific types of service (medical, surgical, X-ray, lab, radiation therapy, preadmission testing, more than 200 types).

Health Hats, the Podcast

Cost, In Any Other Language #145

Innovation is not like switching on a lightbulb for the world. Rather it's local iterative, persistent steps. Thoughts from the Patient Experience Symposium. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Oy, the noise in my head 02:09. 1 Let’s start positive. 03:14. 1 Research and innovation 06:18. 2 Prioritizing innovation – limits 08:32. 3 Innovations in engagement – innovators need innovative settings 09:04. 3 Reflection 09:50  3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Ross Findon on Unsplash Inspired by and grateful to Jan Oldenburg, Kristin Carman, Joanna Siegel, Juhan Sonin, Laura Marcial, James Harrison Sponsored by Abridge Support Health Hats, the Podcast financially Links Patient Experience Symposium COVID-19 Through the Eyes of an American Refugee: A Story of Engagement Co-Designing Telehealth with Patients the Cambridge Health Alliance the Society of Participatory Medicine Hospitals Collaborate to Ensure COVID Care for Every Coloradan Kaiser Permanente funds community health innovations Patient-Centered Outcomes Research Institute, Request for Information: Science of Engagement Funding Initiative Harlan Krumholz Keynote Patient-Powered Research Related podcasts and blogs https://health-hats.com/community-rocks/ https://health-hats.com/cinderblocks4-medical-advocacy-at-its-best/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As I left the Patient Experience Symposium in Boston, (Yes, an in-person conference. How weird!) I felt schizophrenic. On the one hand, has the healthcare industry progressed at all hardwiring the improvement of patient experience? On the other, OMG, so much innovation! I listened to dedicated, diehard patient experience professionals teeming with frustration at the setbacks occurring during COVID-19 days. Families excluded from the bedside; people dying alone; active, engaged, mature patient-family infrastructure canceled, dying on the vine. I also sat rapt, hearing diverse community representatives inspired by collaborative local COVID-19 problem-solving. In this episode, I will muse about healthcare innvation, while trying to stay positive. Thanks to the Society of Participatory Medicine for subsidizing my attendanc...

Innovation, Local Persistence #144

Take a brief break with several six-word caregiver poems, like 'Pillow, Pills, Poop, Piss, and Pain' plus a poem about me from The Good Listening Project. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Six-word caregiving poems 02:37. 1 A Guide to Pathological Optimism 04:38. 2 Reflection 05:34  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Jon Tyson on Unsplash Inspired by and grateful to Jan Oldenburg, Cynthia Meyer, Steve Heatherington, Jane Beddall, Heidi Frei, Tania Marien, Suzanne Jones, Bob Buckley, Gabrielle Pitman, Sue Fantl Spivack Sponsored by Abridge Support Health Hats, the Podcast financially Links Good Listening Project Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/the-silence-between-the-notes/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Hello, fine listeners and readers. This is my 143rd episode and my 510th post. I began weekly blogging on July 24th, 2012, and weekly podcasting on November 28th, 2018. I've missed two posts in nine years. A short episode on mic- just me talking for 10 to 30 minutes- takes five to twelve hours to produce. This episode took six hours. A full 40-to-60-minute interview takes 12 to 40 hours to produce. Yikes. While I enjoy almost every minute of doing it, I feel the pressure of maintaining this production level and quality. A few months ago, I shifted to alternate weeks of interviews and on mic episodes. That reduced the effort. Now I'm going to give myself a break- not stop- because I love it. But not pressure myself to produce every week. So, I will miss some. I'm letting you know. Thanks for your continuing support and support from our sponsor, Abridge, going into our third year together. And as always, thanks to Kayla Nelson and Joey van Leeuwen. You helped me make this great. Thank you. Six-word caregiving poems So, let's start with six-word caregiving poems. For this week, from the past, and it's from an episode on January 13th, 2019. Blood, sweat, tears. Shared by two. Helping one end and another begin. Disaster that ultimately gives back.

Plenty of Poetry– Past and Present #143

Some people pull hand-over-hand for strands of hope and opportunity in the quicksand of tragedy. The entire family strains to recover from the grief of addiction. I appreciate Sarah Cloud’s person-first approach. People are expert in their own lives. Expert means they know much. Experts still need help connecting dots, creating and executing plans, facing pain, and loving self. Check out Sarah’s series about Mama and Papa Paca.  Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Sarah Cloud 01:31. 1 Realizing health is fragile 04:02. 2 Person-first: Expert in our lives, even in a crisis 06:10. 2 Building a crisis management program at Advocates 09:16. 3 Recognizing success 11:05. 3 Fatalities drop 26% 13:55. 4 Children managing their crises -Mama and Papa Paca 18:26. 5 Honoring Sean Staunton 22:24. 6 Why do this podcast episode? 24:37. 6 Reflection 27:13. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Steve Heatherington, Chris Gordon, Lisa van Leeuwen, Gabriel Nathan, Keith Scott Sponsored by Abridge Links The link to Sarah's children's series is  https://mamapaca.com/. The link includes guidance for introducing the books and themes to reinforce.     Boston Bulldog Running Club Learn to Cope Handle with Care Plymouth County Drug Endangered Children Initiative Plymouth County National Alliance for Drug Endangered Children Sean Staunton obituary PCO Hope To the Moon and Back Alpaca Tribe podcast Related podcasts and blogs https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/gratitude-in-loss-together/ https://health-hats.com/peer-support-patience-and-kindness/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem What happens to the children orphaned by COVID19 or overdose once the immediate crisis passes? How can communities respond to prevent or lessen the crises? What tools can families and helping people access? No one in my varied career had a more comprehensive, sensible approach to crisis management than Sarah Cloud. Sarah is a force of nature. Introducing Sarah Cloud Sarah Cloud received a Master of Social Work from Boston College in 1996 and a Master of Business Administration in 2018. During her career, Sarah has been recognized for her leadership through award...

Crises: Opportunity for Children to Cope #142

Are you a patient-caregiver activist winding down? Let's chat and hand off to younger people feeling their way & support them as they perceive their needs. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Winding down. 1 The Health Hats of Tomorrow 02:31. 1 Legacy 03:23. 1 Succession planning 04:42. 2 The movement cycle 06:46. 2 Collaborate? 07:54. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by Brett Jordan on Unsplash Web/social media coach, Kayla Nelson Mambo Inn composed by Mario Bauza and played by Lechuga Fresca Latin Band Inspired by and grateful to Bill Adams, Freddie White Johnson, Beverly Rogers, Jan Oldenburg, Neely Williams, Thomas Scheid, Pancho Chang, Matt Cheung, Janice McCallum, Casey Quinlan, Dave DeBronkart, Regina Greer-Smith, Sharon Levine, Philip Posner, Janice Tufte, Jane Sarasohn-Kahn, Susan Woods, Michael Millenson, Peter Elias, Cynthia Meyer Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/share-the-stories-help-the-helpers/ https://health-hats.com/caring-for-parents-its-their-life-open-the-door/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Winding down As a direct care nurse, I sought to put myself out of business one patient at a time. As a boss, I had succession planning as top of mind, ensuring the team continued to operate without me if I got fired, laid off, or run over by a bus. Now I’m winding down. I’m past my prime.  I’m seasoned. I’ll be 70 this year. What legacy do I leave? Who’s coming up in the patient-caregiver activist world. How can I support the next generations of activists? Legacy includes spirit, inspiration, a written and oral body of work, plus policy and practice change hardwired into teams, organizations, and communities. Succession planning includes mentoring, coaching, mastermind groups, and opening more paid seats at the table. Goodness, stated like that, it feels like more work rather than winding down. The Latin band Lechuga Fresca plays Mambo Inn, the music behind the podcast. In addition, thanks to Joey van Leeuwen who creates the amazing music for my podcast, heard here in the intro and outro and our sponsor’s message,

Legacy and Succession Planning for the Seasoned #141

Person-first measurement of value in healthcare. Chat with Jennifer Bright @IVI_Health. Problem-solving led by people making clinical decisions. Check it out. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Sara Traigle van Geertruyden, Libby Hoy, Tanisha Carino, Matthew Pickering, Cynthia Cullen, John Shaw, Kristin Carman, Geri Baumblatt Sponsored by Abridge Links Innovation and Value Initiative Main site: https://www.thevalueinitiative.org  IVI Principles:  https://www.thevalueinitiative.org/principles-for-value-assessment-in-the-us/ Membership:  https://www.thevalueinitiative.org/membership/ Partnering with Patients:  https://www.thevalueinitiative.org/partnering-with-patients/ Partnership to Improve Patient Care National Quality Forum Dr. Dana Safron PCORI: Patient-Centered Outcomes Research Institute Related podcasts and blogs https://health-hats.com/difference_collaborative/ https://health-hats.com/teachable-spirit-patient-family-advisors/ https://health-hats.com/partner-with-people-at-the-center-end-to-end/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Value propositions can be vague, aspirational, and ethics remote.  Think: Uber – The Smartest Way to Get Around; Apple iPhone – The Experience IS the Product; Walmart – Everyday Low Prices; Google – Search Engine for the World. Imagine these: XYZ Hospital – Money back guarantee Acme Specialty Services – On-time appts or we pay you We Wish Think Tank – Research for patients People’s Pharmacy – Medications you can afford I’ve heard people in healthcare say value equals quality + patient experience/cost. All of this makes me crazy. We have no idea of what cost means anywhere in healthcare. We spend too little time understanding quality to whom - individuals when they’re patients, caregivers, or clinicians OR groups of people – communities, OR companies – insurers, employers, healthcare providers?  Before we go any further, let me thank Joey van Leeuwen who creates the amazing music for my podcast, and Kayla Nelson, who serves as my web/social media coach and produces the video trailers for my podcast. You transform my podcast from good to great. You add value. Introducing Jennifer Bright

Find Value: Keys Lost in Dark Alley. Look Under Streetlight?

Altered states. Normal is a dryer setting. Adapting to life. Patient hacking. With the brilliant, hilarious, passionate Mighty Casey Quinlan. Life is good. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Altered States. Normal is a Dryer Setting. 02:27. 1 Abilities. Disabilities. Adjusting and Adapting. 04:34. 2 Planning to swim, eat out, live 08:46. 3 Oh, that old heavy horn 11:33. 4 #PatientHackers. @PatientHackers 13:25. 4 Defcon 14:41. 4 Help me hack it, please 18:02. 5 C U Soon. Navigating in person during Covid 22:31. 6 F Cancer, I Ain’t Done Yet 24:11. 7 Reflection 25:09. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Jan Oldenburg, Andrea Downing, Janice McCallum, Janice Tufte, Susannah Fox Sponsored by Abridge Links https://twitter.com/PatientHackers https://defcon.org/   https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://health-hats.com/pod127/ https://health-hats.com/pod132/ https://health-hats.com/temporarily-able-bodied-people-were-in-this-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Welcome to the third in a series of conversations with Mighty Casey Quinlan of Healthcare is Hilarious fame. We both take the raw audio file and publish our production. Casey published her version last week entitled Altered States. Mine is called Normal – a Dryer Setting. We used each other’s words with different perspectives on the same conversation. Fortunately, we’re both doing better than we were a few weeks ago. The prednisone erased my debilitating pain, I bought a new stand for my baritone sax, so I don’t carry the weight around my neck through my spine.  I graduated from 5 minutes a session to 30 minutes at a time, even rehearsing with my band last night, and changed position with each tune. I’m walking better, though my altered state allows for less distance than before.  I stopped taking a medication that dropped me into despondency. Life is good. In addition to at the end, upfront, let me thank Joey van Leeuwen who creates the amazing music for my podcast, and Kayla Nelson,

Normal, a Dryer Setting with Mighty Casey Quinlan #139

Opening my heart. Grieving the loss of Robert Doherty, loss of others, loss of self. Coping with life. Doing our best. No regrets. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Meeting and working with Bob Doherty 01:39. 1 74 years old, learning from a young man 02:42. 1 Deconstructing grief 04:54. 2 Grieving loss of self 08:16. 2 Death in your life. Death in my life 09:38. 3 Coping with life, doing our best 12:58. 3 No regrets 14:20  4 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to June Richardson, Dorothy Cuccinelli, Luc Pelletier, Lou Desso, Peter Semenza, Lynn Wilson, Judy Thomas, MarlaJan Wexler, Gregor MacDonald, Frank Lanzilote, Carl Roberts Sponsored by Abridge Support Health Hats, the Podcast financially Links Robert Doherty 1944 - 2021 Related podcasts and blogs https://health-hats.com/superpower-accepting-what-is-1-99/ https://health-hats.com/covid19-end-of-life-choices/ https://health-hats.com/manage-the-stress-you-can/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My first podcast episode took an interview my dear friend, Bob Doherty, videotaped with my son, Mike Funk, a couple of months before Mike died in 2002. I took the soundtrack of that VHS tape and overlayed a chat I recorded with Bob in 2018.  Bob and my unusual, deep relationship began when he was my boss at St. Peter’s Addiction Recovery Center (listen to last week’s episode for a brief description of some of the work we did together). My wife and I became dear friends with Bob.  Bob died on August 3rd of complications of stomach cancer. I grieve. Meeting and working with Bob Doherty 01:39 Bob and I first met when he interviewed me for a job.  I asked him for his references. He laughed (great laugh) and gave me a couple of references that I called. Bob’s a good guy, can be challenging, doesn’t suffer fools gladly. Bob loved to tell that story whenever he could.  Bob said to me as his Director of Quality Management, you’re in the difficult position in that you’re the conscience of the company and you want to be liked. How do you navigate that?  He also said that I was an acquired taste.  I told that story as often as I could. Bob was a breath of fresh air. 74 years old,

Deconstructing Grief

Communities take action to improve. Shared measurement lights the way. Simple, routine, effective. Lessons learned from the field with Tania Dutta & Uma Kotagal Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Tania Dutta and Uma Kotagal 02:44. 2 Aligning systems, communities, equity, shared measurement 08:22. 3 Scientific, valid, meaningful, and warm 14:51. 4 Minus nine to nine 16:53. 5 Healthy births to graduation from third grade 17:51. 5 Infant mortality, prematurity, poverty, inequities 19:51. 5 Scientists, clinicians, and community members together plus deep design work 21:40. 6 Guiding principles 24:56. 6 Getting measurement right. Parsimonious, discrete, improvable 27:06. 7 Everybody meets. Everybody talks. 30:00. 8 Co-creation 30:43. 8 San Antonio 2020 33:59. 9 Lessons learned for other communities 36:11. 10 Listening sessions 37:58. 10 Brilliant ideas insufficient. Roll up our sleeves. Trust and humility. 39:22. 10 Technical side of improvement 42:37. 11 A seat at the table, not on the menu 43:39. 11 Leadership. Willing to see and act. Build capacity. 44:55. 12 Reflection 48:23. 13 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Isaac Quesada on Unsplash Photo by Christina @ wocintechchat.com on Unsplash Photo by Franco Antonio Giovanella on Unsplash Inspiration from Ellen Schultz, Robert Doherty, Lynn Wilson, Matthew Pickering, Cynthia Cullen, Shelley Fuld Nasso, Mary Barton,  Michelle Lenox, James Harrison, Bevin Croft Sponsored by Abridge Links  Aligning Systems with Communities to Advance Equity through Shared Measurement All Children Thrive Helping Cincinnati’s 66,000 children be the healthiest in the nation through strong community partnerships SA2020 Explore San Antonio's progress Southern California Association of Governments (SCAG) LA County Homeless Initiative Coalition for Community Schools Vermont Health in All Policies Related podcasts and blogs https://health-hats.com/zen_relationshipcentered_measure/ https://health-hats.com/pod122/ https://health-hats.com/minister-to-community-spirit/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I call myself a patient-caregiver activist, a change agent, always gravitating toward action.  I look for what works for me,

Communities Advancing Equity through Shared Measurement

Release endorphins in presence of professionalism & diversity. Open heart, boost learning, respect, action. Don’t waste time, give hurt dignity. Care & artistry Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Convening diversity for action. 1 Professions and professionalism 2:03. 1 Responsibilities of professionalism 03:29. 1 Open your heart. Likely to get burned. Then what? 04:52. 2 Recharging my batteries. Thank you. 06:29  2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Photo by UNIBOA on Unsplash Photo by Roberto Nickson on Unsplash Photo by Kristina Litvjak on Unsplash Web/social media coach, Kayla Nelson Inspired by and grateful to: Curtis Cates, Tania Marien, Kathy Cocks, Ame Sanders, Amy Price, O Horvath, Amanda Blodgett, Fred Guitierrez, Steve Heatherington, Jane Beddell, Bob Buckley, Karena DeSouza, Heidi Frei, Dafna Gold-Melchior, Suzzanne Jones, Matt Neil, Dawn Powell Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/pod135/ https://health-hats.com/pod134/ https://health-hats.com/pod128/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Convening diversity for action I continue to survive and thrive. I sit around three to six tables every week with people asking questions, solving problems, figuring out how to learn, and getting things done.  Endorphin flow guaranteed. More flow, best results, most enjoyment, and inspiration when those people around the table have varied skills, experiences, and backgrounds. When I convene or join these gatherings, I seek colleagues with variation and diversity, especially different from mine. Naturally, in these situations, some people don’t know each other. When they first gather, they might feel confident, at ease, unsure, intimidated, confused, hopeful, curious. Participants join to fill different or several roles: convener, leader, cheerleader, sponge, coach, doer, expert, scribe.  Sound familiar? Professions and professionalism When a diverse group of people gathers for the first time and look around the room, some look at themselves and compare. Who’s who? Who’s up, who flashes, who do I know?  A few might feel professional, and others not so much. Merriam-Webster defines a profession as a calling that requires...

Recharging Batteries with Professionalism. Who Knew?

In my youth, sex roles; today, gender identity. While rich with LGBTQ+ in my families, I know so little. O Horvath generously walks us through their transition. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Photo by Sharon McCutcheon on Unsplash Inspiration from Michelle Horvath, Chris Gordon, Betsy Swift, Jacky van Leeuwen, Luc Pelletier, Jennifer Keeney, Rebecca Archer, Lillie Rizack, Carol Murray, Jane Spielman Sponsored by Abridge Links   Related podcasts and blogs https://health-hats.com/giving-tanks/ https://health-hats.com/children-of-the-sun-earth-and-moon/ https://health-hats.com/pod111/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My father, a homosexual deep in the closet, died in 1972 at age 45 without coming out. I was 20. My  dad’s brother never lived in the closet. When eight years old, I asked my uncle why he never married. ‘I’m homosexual.’ OK, no big deal. That explained it—good information to have. Growing up, I knew I was different. I never approached being a jock. I had friends who were girls. I never played ball with my dad. He got manicures. I didn’t understand masculine and feminine. In my first year of college in 1969, I took a course in Social Psychology of Sex Roles, opening my eyes to Women’s Lib, my place and gender identity and introducing me to long-lasting friends and partners. Gravitational pull? Although I didn’t yet know about my dad. On September 11th (yes, that 9/11), I met Michelle Horvath at a conference in Reno, NV. We both lived in upstate NY, and since we couldn’t fly or rail home, we rented a car and drove home together. We bonded during those several days, became close friends. My boy, Mike Funk, died the following year. Michelle, her husband, and two children came to the memorial service.  Several years ago, Michelle told me that O was transitioning. We spoke about her love for her children and grief at losing a daughter. Michelle adjusted. O expressed an interest in recording a conversation for my podcast about transitioning. Honored and trusted only begin to express my emotions at this opportunity. Introducing O Horvath While preparing for this recorded conversation O said, For the podcast, I'd like to be referred to as O /O Horvath.

Self-love in Gender Identity, Transitioning

Abilities changing. Can’t play my horn. Acute pain on top of chronic pain. Need new solutions. Right-sizing virtual and in-person visits. Maintain optimism. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Life without sax?  Oh, no! 1 Acute pain, chronic pain, which? 02:34. 1 Face and adjust to changing abilities 04:15. 1 Right-sizing virtual and in-person primary care 06:37. 2 Maintaining spirit, pathological optimism 07:45. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Duke Ellington's Caravan is played by Lechuga Fresca. Ryan Vasios, alto sax, Josh Rosenstock, bass, Karen Welling, keys, Andrea Cowen and Danny van Leeuwen, percussion Web/social media coach, Kayla Nelson Photo used by permission from Diana Beidler Simonton Inspired by and grateful to Sarah Anne Shockley, David Edwards, Penny Cowan, Melisa Reynolds, Cynthia Covert, Casey Quinlan Sponsored by Abridge Support Health Hats, the Podcast financially Links The Pain Companion Related podcasts and blogs https://health-hats.com/blessings-in-chronic-pain/ https://health-hats.com/chronic-pain-a-jealous-narcissist/ https://health-hats.com/chronic-pain-management-science-art-experiment/ https://health-hats.com/about-mypain/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Life without sax?  Oh, no! I haven’t been able to play my baritone saxophone for a few weeks.  I’m bummed and worried. I often speak about my health goals: progress as slowly as possible, don’t fall, don’t mess with my pathological optimism, and continue playing the baritone saxophone.  I haven’t been able to play due to issues with my back, decreasing mobility, and the weight of the big 25-pound horn hanging around my neck. I’ve been playing an average of an hour a day for the past 18 months. The more I play, the more equipment I accumulate and lug around.  One place I rehearse weekly has 2 flights of steep steps.  It’s been getting more difficult and riskier to climb those stairs. I know that I could get band mates to haul equipment for me. That’s not the problem. I haven’t been able to stand and play for 15 years. I sit. But I spent the last couple of weeks not able to sit for more than 15 minutes at a time. If I can’t sit and hold the sax with a shoulder harness, I can’t play. What are my options?

Life without sax? Adapt to changing abilities.

US worse in maternal mortality among rich nations. Black women 2.5x more likely to die than white women. Drs. Whitt & Masinter discuss fragmented care and info. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Drs. Whitt and Masinter 04:58. 2 Disparities in access to outpatient maternal health 07:08. 3 Transitions of Care and outcomes in maternal healthcare 13:37. 4 A long-known, worsening, unsolved problem 17:26. 5 Pushing up regulations and financial incentives hills 24:51. 7 Clinicians that look like you 25:36. 7 Research what we know or study potential solutions? 27:12. 7 Low-hanging fruit gone 29:50. 8 Hyper-local solutions 31:40. 9 Holes in our data, gaps in our knowledge 33:49. 9 How can we, mere mortals, participate? 37:38. 10 Wave your magic wand and do what? 40:23. 11 Health Information Exchanges HIEs 41:39. 11 Integrating public health/community resource use 43:36. 12 Reflection 47:24  13 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Julia Skapik, Lillie Rizack, Maria Michaels, Ellen Schultz, Linda DeRosa, Anica Madeo, Bevin Croft, Bonnie Englebart, Liz Salmi, Regina Holliday, Jane Sarasohn-Kahn Sponsored by Abridge Links CDC Maternal Mortality Federally Qualified Health Centers OCHIN, the Oregon Community Health Information Network. Alliance Chicago, advancing community health through collaboration, technology, and research Health Populi What Poor Birth and Maternity Outcomes in the U.S. Say About American Healthcare & “Infrastructure” United States core data for interoperability United States Core Data for Interoperability (USCDI) The United States Core Data for Interoperability (USCDI) is a standardized set of health data classes and constituent data elements for nationwide, interoperable health information exchange. Review the USCDI Fact Sheet to learn more. Adams Announces MOMS Act and Maternal CARE Act to Conclude Black Maternal Health Week The MOMS Act would expand the Alliance for Innovation on Maternal Health (AIM) program, which develops standardized maternal safety best practices to prevent maternal mortality and morbidity and would establish a new grant program to provide states and hospitals with the resources and training needed to implement the best practices to prevent maternal death and complications before, during, and after childbirth. AMERICA IS FAILING ITS BLACK MOTHERS from the Harvard Chan School Business Model Innovation for Inclusive Health Care Delivery at the Bottom of the Pyramid This article investigates business models innovation for delivering health care at the base of the pyramid (BoP). The examination of six health care organizational cases suggests that co-creation of patient needs, community engagement, continuous involvement of customers, innovative medical technology, focus on human resources for health, strategic partnerships, economies of scale, and cross-subsidization are business model innovation strategies that enable inclusive health care delivery. Based on these findings, we propose a four-dimensional framework. A process of value discovery, leading BoP patients and communities to recognize a health need and seek for an acceptable treatment, precedes the identification of a successful value proposition.

Systemic Disparities & Inequities in Maternal Health. Still?

Mighty Casey Quinlan's #MetsParty returns from the hospital. Worth it. Took control. Alive, cooking, eating, working. Piss and vinegar. Pasta. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Enough control to call 911 on me 02:23. 1 Mobility, pain, the Outer Banks, and Rockettes 06:17. 2 Stay put, avoid the stairs, recognize privilege 08:58. 3 Spirits, sorting out home health 11:40. 4 Alive, eating, cooking 14:05. 4 Working for a Yankee dollar 18:07. 6 Receiving end of hospitalists. Coordination of care still on me. 20:37. 6 Connection 23:39. 7 Reflection 25:27  8 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Background music (CoCo My My by Estansislao Servia) performed by Lechuga Fresca  with Josh Rosenstock, Karen Welling, Andrea Neptune, Betsy Cowan, Cornell Coley, Jon Fraser, Ryan Vastos, Stephen DeBenedictis, and Danny van Leeuwen Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by You Know Who You Are Sponsored by Abridge Links https://mightycasey.com/healthcare-is-hilarious/ How to Deal with Difficult Patients: A Message from Casey Quinlan, Patient Advocate Related podcasts and blogs https://health-hats.com/pod127/ https://health-hats.com/medication-list/ https://health-hats.com/reading-the-room-and-yourself/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Our friend and inspiration, Casey Quinlan, returns from five days in the hospital. Casey authors and produces a podcast, Healthcare Hilarious.  I sponsor Healthcare is Hilarious. Since this bit of fun with Stage IV metastatic cancer, Casey lacks the energy to maintain her weekly delivery schedule, so I’m recording our exchanges. Casey can use them to keep her fans and followers up to date. Listen to the raw, unedited version #MetsParty goes to the hospital here. Why do I cross-post this dialogue? I never record conversations with people in the throes of their health challenges on this podcast. Why not take the opportunity when it appears? Who has that kind of energy when they’re down?  Remember those 2Cs I’ve spoken about in the past? The 3Ts and 2Cs of best health (trust, time, talk, control, and connection). When you feel like crap, control and connection take a hit.  By their very nature, hospitals and feeling like crap eat control and con...

Healthcare is Hilarious. Continuing Mets Saga. Hospital. Home.

More of the Tomoff 20-year odyssey with 5 rounds of cancer. Open your heart to community. Bottle empathy. Embrace post-traumatic growth. Succession planning. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 1 Help the helpers help. 02:05. 1 Open heart, share wisdom, transform, bottle it 04:51. 2 Control, empathy, connection, movement 08:25. 3 Open doors, close doors with post-traumatic stress 12:54. 4 Open and close doors with post-traumatic growth, too 15:23. 4 Succession planning 20:12. 6 Honor the village 24:37. 7 Last words with Olivia 27:14. 7 The drama of family dynamics - intimate in a vulnerable state 28:34. 8 Good news, the unexpected 30:51. 8 Last words from Ryan 32:43. 9 Reflection 34:01. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to David Bourne, Jennifer Keeney, Stephanie Oden, Lisa van Leeuwen, Kathy Cocks Sponsored by Abridge Links The Focused Fight by Terri Tomoff Leukemia Lymphoma Society The Difference Collaborative Knowledge for Caregivers Podcast by Kathy Cocks Related podcasts and blogs https://health-hats.com/pod130/ https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/demntia_covid19/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) Welcome back to the Tomoff Family, Olivia, Bill, Terri, and Ryan.  Terri Tomoff wrote a book, The Focused Fight, a story about hope and survival of one ordinary family and their community of support to bring a two-year-old through five cancers over twenty years (three times leukemia and twice adult tongue cancer).  In episode 1, Honor Supporting Cast, the Stars of Disabling Conditions, we met the Tomoff's and talked about 'We're different, That's normal'; spiritual health; pillow, pills, poop, and piss; and freaking out. All inward-looking. Inward into the family. Today we'll shift our gaze out to the community and into the future. As care partner to several family members' end-of-life-journeys, I felt the awkwardness of the loving, the concerned, and the generous. How can we help? What's acceptable language? Am I intruding? We'll hear thoughts from the Tomoffs about living through difficulties and bursting to share what worked and didn't wor...

Honor Supporting Cast: Part 2. Want to Help? Just Do It.

Empowering people as they travel together toward best health.

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Health Hats, the Podcast

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