This episode has been translated for a Spanish-speaking audience. Support for this episode comes from Novo Nordisk. Please click here for prescribing information. Cathy shares what it is like to live with Glanzmann's thrombasthenia and how a treatment has helped her manage her condition. Some topics discussed in this podcast may not be appropriate for children.

In My Words

Glanzmann's Thrombasthenia: Cathy's Story (En Español)

Multiple sclerosis, or MS, is a topic we've covered in the past. But, everyone's experience with the condition is unique. In our next two episodes, we hear from Astrid, an MS advocate who has been living with the condition for over six years. In this episode, we hear her diagnosis story, as she provides some helpful advice she's learned over the years. We also hear from Dr. John Parratt, a neurologist at Royal North Shore Hospital in Sydney, Australia, who provides a clinical perspective and advice from his years treating MS patients. This episode is kindly supported by MS Australia and is sponsored by Roche Australia (Sydney). Material number EC-AU-9369, prepared Apr2020. Episode References:  MS Australia. Understanding Multiple Sclerosis – An Introductory Guide. Available at: https://www.msaustralia.org.au/publications/understanding-ms-introductory-guide Chwastiak LA, Ehde DM. Psychiatric issues in multiple sclerosis. Psychiatr Clin North Am. 2007;30(4):803–817.  

Astrid's Story: Living With MS

Managing a chronic condition like multiple sclerosis can be complicated. In the second part of Astrid’s story, we hear about her experiences with disease symptoms and complications, treatment, supportive therapies, lifestyle changes, and support networks, all of which play a part in helping her and others with MS live well. We’ll again hear from Dr. John Parratt about what it’s like managing the condition, including explanations of treatment types and strategies for getting the support you need as a person living with MS.  This episode is kindly supported by MS Australia and is sponsored by Roche Australia (Sydney). Material number EC-AU-9437, prepared Apr2020. Episode References: MS Australia. Symptoms. Available at: https://www.msaustralia.org.au/about-ms/symptoms. Accessed April 2020. MedicineNet. Medical Definition of Proprioception. Available at: https://www.medicinenet.com/script/main/art.asp?articlekey=6393. Accessed April 2020. International Association for the study of pain. IASP Terminology – Neuropathic pain. Available at: https://www.iasp-pain.org/terminology?navItemNumber=576#Neuropathicpain. Accessed April 2020. WebMD. What Are the Side Effects of Pain Medication? Available at: https://www.webmd.com/pain-management/pain-medication-side-effects#2. Accessed April 2020. MS Australia. Medications & Treatments. Available at: https://www.msaustralia.org.au/about-ms/medications-treatments. Accessed April 2020. MS Australia. Understanding Multiple Sclerosis – An Introductory Guide. Available at: https://www.msaustralia.org.au/publications/understanding-ms-introductory-guide. Accessed March 2020. MS Australia. Diet & Nutrition. Available at: https://www.msaustralia.org.au/wellbeing-ms/diet-nutrition. Accessed April 2020. Exercise is Medicine Australia Factsheet. Available at: http://exerciseismedicine.com.au/wp-content/uploads/2019/12/Factsheet-MS-BRIEF-VERSION-2014.pdf. Accessed April 2020. Chwastiak LA, Ehde DM. Psychiatric issues in multiple sclerosis. Psychiatr Clin North Am. 2007;30(4):803–817. MS Research Australia. MS Treatments. Available at: https://msra.org.au/treatments/. Accessed April 2020. Broadley SA, Barnett MH, Boggild M, Brew BJ, Butzkueven H, Heard R, Hodgkinson S, Kermode AG, Lechner-Scott J, Macdonell RA, Marriott M, Mason DF, Parratt J, Reddel SW, Shaw CP, Slee M, Spies JM, Taylor BV, Carroll WM, Kilpatrick TJ, King J, McCombe PA, Pollard JD, Willoughby E. A new era in the treatment of multiple sclerosis. Medical Journal of Australia 2015; 203(3): 139-141. Clanet MC, Wolinsky JS, Ashton RJ, Hartung HP, Reingold SC. Risk evaluation and monitoring in multiple sclerosis therapeutics. Mult Scler 2014; 20(10): 1306-1311. Halabchi F, Alizadeh Z, Sahraian MA, Abolhasani M. Exercise prescription for patients with multiple sclerosis; potential benefits and practical recommendations. BMC Neurol 2017; 17(1): 185. Klotz L, Havla J, Schwab N, Hohlfeld R, Barnett M, Reddel S, Wiendl H. Risks and risk management in modern multiple sclerosis immunotherapeutic treatment. Ther Adv Neurol Disord 2019; 12: 1756286419836571. Mokhtarzade M, Ranjbar R, Majdinasab N, Patel D, Molanouri Shamsi M. Effect of aerobic interval training on serum IL-10, TNFalpha, and adipokines levels in women with multiple sclerosis: possible relations with fatigue and quality of life. Endocrine 2017; 57(2): 262-271. Tintore M, Vidal-Jordana A, Sastre-Garriga J. Treatment of multiple sclerosis - success from bench to bedside. Nat Rev Neurol 2019; 15(1): 53-58. Zimmer P, Bloch W, Schenk A, Oberste M, Riedel S, Kool J, Langdon D, Dalgas U, Kesselring J, Bansi J. High-intensity interval exercise improves cognitive performance and reduces matrix metalloproteinases-2 serum levels in persons with multiple sclerosis: A randomized controlled trial. Mult Scler 2018; 24(12): 1635-1644. 

Astrid's Story: Managing MS

Support for this episode comes from Novo Nordisk. Please click here for prescribing information. Cathy shares what it is like to live with Glanzmann's thrombasthenia and how a treatment has helped her manage her condition. Some topics discussed in this podcast may not be appropriate for children.

Glanzmann's Thrombasthenia: Cathy's Story

Luka goes on an adventure to learn how vernal keratoconjunctivitis affects the eyes and what he can do to manage it.

Understanding Vernal Keratoconjunctivitis (VKC) Audiobook

Support for this episode comes from Novo Nordisk. Vaughn shares what it was like growing up with hemophilia and how medicine has helped him manage his condition. You can also watch a video to learn more about the Ripley family. The post Hemophilia: Vaughn’s Story appeared first on In My Words.

Hemophilia: Vaughn’s Story

Robbie takes a trip to the kidneys to learn more about how the kidneys work, what happens when they are damaged, and what treatments are available. Sign up for more resources at JumoHealth.com. The post Understanding Chronic Kidney Disease appeared first on In My Words.

Understanding Chronic Kidney Disease

Daron shares the little things he does to help keep his blood sugars under control, while maintaining his university workload to avoid burnout. Nurse Joanna Naylor talks about the importance of informing your employers and co-workers about your condition, and of having a job you’re passionate about. Finally, Daron offers tips for diabetes management while […] The post Type 1 Diabetes: Career, Workplace, and Travel appeared first on In My Words.

Type 1 Diabetes: Career, Workplace, and Travel

Daron and diabetes nurse, Joanna Naylor, discuss healthy relationships and the importance of educating family, friends, and flatmates on diabetes so they can provide extra support. They also talk about the transition period from parents managing your blood sugars to taking care of yourself. This episode was created using excerpts from our interviews with Daron […] The post Type 1 Diabetes: Relationships and Flatmates appeared first on In My Words.

Type 1 Diabetes: Relationships and Flatmates

Cody and Lexi learn about their father’s lung cancer – how lung cancer affects the body, common symptoms, and how lung cancer is treated. Sign up for more resources at JumoHealth.com. The post Understanding Lung Cancer Audiobook appeared first on In My Words.

Understanding Lung Cancer Audiobook

Daron shares how type 1 diabetes has impacted his exercise routines and how he keeps a positive mindset. Diabetes nurse, Joanna Naylor, explains how working with a diabetes practitioner can help improve mental health and overall blood sugar management. Daron and Joanna also discuss the potential dangers of drinking alcohol as a person living with […] The post Type 1 Diabetes: Health and Lifestyle appeared first on In My Words.

Type 1 Diabetes: Health and Lifestyle

In his words, Karl shares his experience of being diagnosed with type 2 diabetes in his 30’s and how it has changed his life. Doctor Murphy debunks common myths and offers advice on successful T2D management. This episode was created using excerpts from our interviews with Karl Rudolph and Doctor Rinki Murphy. This episode is […] The post Type 2 Diabetes: Karl’s Story appeared first on In My Words.

Type 2 Diabetes: Karl’s Story

Daron tells us the story of his diagnosis with type 1 diabetes at age 12 and how he’s learned to manage life after diagnosis. Diabetes nurse, Joanna Naylor, shares her clinical perspective and debunks some of the misconceptions and challenges surrounding living with the condition. This episode was created using excerpts from our interviews with […] The post Type 1 Diabetes: Daron’s Story appeared first on In My Words.

Type 1 Diabetes: Daron’s Story

Jenny aprende cómo el asma afecta los pulmones, cómo manejar los ataques de asma, y qué médicas pueden ayudar a controlar el asma. The post Aprendamos sobre el Asma appeared first on In My Words.

Aprendamos sobre el Asma

Sam and her mom learn what to expect during a clinical, what permission is needed, and how how participating in a clinical trial can help others. Sign up for more resources at JumoHealth.com. The post Understanding Clinical Trials Version 2 Audiobook appeared first on In My Words.

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