In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life. The post Episode 16: NETs and Nutrition appeared first on NETRF.

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Episode 16: NETs and Nutrition

When you're fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person - mind, body, and spirit - is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don't be scared of the "P" word! The post Episode 15: Supportive Care for the Mind, Body, and Soul appeared first on NETRF.

Episode 15: Supportive Care for the Mind, Body, and Soul

Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are unique tumors in that they can produce excessive amounts of “fight or flight” hormones that can cause over 100 different signs and symptoms. The symptoms can come and go and […] The post Episode 14: Pheos and Paras — NETs Known as “the Great Mimic” appeared first on NETRF.

Episode 14: Pheos and Paras — NETs Known as “the Great Mimic”

What role do genetics play in neuroendocrine tumors? Is genetic screening right for you? In this episode of NETWise, we’ll explore the role DNA plays in NETS and why your genetic code might hold important implications for treatment strategies and the health of family members. The post Episode 13: NETs and Genetic Screening appeared first on NETRF.

Episode 13: NETs and Genetic Screening

Caregivers Share the Burden of a NET Diagnosis A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love.  A spouse, child, or friend may take on the role of caregiver—a partner to the patient on the NET journey and advocate for their loved one.  It’s a job […] The post Episode 12: The Importance of Caregivers appeared first on NETRF.

Episode 12: The Importance of Caregivers

Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can […] The post Episode 11: AYA (Adolescents and Young Adults) and NETs appeared first on NETRF.

Episode 11: AYA (Adolescents and Young Adults) and NETs

Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs? While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms.  PNETs are complex because the pancreas plays an essential […] The post Episode 10: Pancreatic NETs appeared first on NETRF.

Episode 10: Pancreatic NETs

Did you know that 12% of gastrointestinal (GI) NETs are found in the small bowel? The small bowel, or the small intestine, is one of the most common places NETs form. If you are living with a small bowel NET, this episode is for you. In this episode, you will learn more about the anatomy […] The post Special Episode: Small Bowel NETs appeared first on NETRF.

Special Episode: Small Bowel NETs

Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health […] The post Special Episode: Lung NETs appeared first on NETRF.

Special Episode: Lung NETs

New Ways to Detect and Treat NETs What are clinical trials? In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll learn about the different stages of research and how promising drug compounds progress through them. You will also learn how clinical […] The post Episode 7: Clinical Trials appeared first on NETRF.

Episode 7: Clinical Trials

Using Virtual Appointments to Care for NET Patients In this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and stay-at-home orders, NET specialists are switching to telemedicine visits as a new option. The increased use of telemedicine over the past few months […] The post Special Episode: COVID-19 and the Rise of Telemedicine appeared first on NETRF.

Special Episode: COVID-19 and the Rise of Telemedicine

Functional and Non-Functional NETs This episode is about managing the symptoms of functional NETs. To understand these symptoms, we start by talking about hormones. What role do hormones play in the human body? And what do they have to do with NETs? We’ll help you understand the differences between functional and non-functional NETs. You’ll also […] The post Episode 6: Managing Symptoms of NETs appeared first on NETRF.

Episode 6: Managing Symptoms of NETs

What treatments do oncologists use to slow or stop neuroendocrine tumor growth? What role do newer approaches like targeted therapy or immunotherapy play in treating neuroendocrine cancer? And what drugs can be used to alleviate symptoms caused by hormone-producing tumors? The post Episode 5: Medical Management of NETs appeared first on NETRF.

Episode 5: Medical Management of NETs

In this special episode of NETWise, listen as we talk about COVID-19. As a NET patient, you may have additional risk for serious illness from COVID-19, so we share some tips for avoiding infection, managing your NET treatment, and staying mentally healthy during this challenging time. NETRF CEO, Elyse Gellerman, chatted with Dr. Mark Lewis, […] The post Special Episode: COVID-19 and NETs – What You Need to Know appeared first on NETRF.

Special Episode: COVID-19 and NETs – What You Need to Know

Treating NETs with Nuclear Medicine This episode of NETRF’s NETWise podcast discusses Peptide Receptor Radionuclide Therapy (PRRT) a targeted form of radiotherapy approved in the U.S. in 2018. Listen in as NET experts like Josh Mailman, Drs. George Fisher, Thor Halfdanarson, Ed Wolin, Richard Baum, and others explain what it is, how it works, and […] The post Episode 4: Nuclear Medicine for NETs: What is PRRT? appeared first on NETRF.

Episode 4: Nuclear Medicine for NETs: What is PRRT?

NETWise, a podcast about neuroendocrine cancer, is here to help patients and caregivers navigate the world of NETs.

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