The annual health insurance open enrollment period has begun! And a lot of people tend to get through open enrollment on autopilot, assuming that the health insurance that they had last year will continue to serve them well next year. But policies change. Physician networks change. And prescription drug formularies change. If you're living with MS, you can't afford to be on autopilot when it comes to making health insurance decisions. Those decisions can cost you -- in time, money, and unnecessary heartache. Every year during open enrollment, the National MS Society's MS Navigators help a lot of people make the best health insurance decisions for themselves and their families. So, I'm thrilled to be talking about all the things you want to carefully consider during open enrollment with MS Navigator Nicole Vasquez. We're also talking about a study that illustrates how the social determinants of health play a significant role in creating healthcare disparities among members of minority communities who are living with MS. We'll tell you about two companies that are partnering to test the effectiveness of an AI-powered app at predicting MS progression by tracking eye movement. You'll hear about the biopharmaceutical company that's hoping to treat relapsing-remitting MS with an ingredient used in ancient Chinese medicine. We'll remind you that Big October 2021 is happening right now, and you still have time to participate. And we'll share the Top 10 Best and Worst Cities in the U.S. for People with Disabilities. We have a lot to talk about! Are you ready for RealTalk MS??! Social determinants of health impact healthcare disparities among members of minority communities who are living with MS  2:34 Novartis Canada teams up with Innodem to test innovative tech that may predict MS progression   5:44 Medsenic is hoping to treat relapsing-remitting MS with an ingredient used in ancient Chinese medicine   7:43 The 10 Best and Worst Cities in the U.S. for People Living with Disabilities  9:32 Big October 2021 is happening now! Are you registered? 12:18 Nicole Vasquez tells us what we need to be thinking about during open enrollment   13:22 Share this episode  28:49 Catch Episode 6 of The MS Caregiver Conundrum  29:10 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/216 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com STUDY: Health Disparities, Inequities, and Social Determinants of Health in Multiple Sclerosis and Related Disorders in the US: A Reviewhttps://jamanetwork.com/journals/jamaneurology/article-abstract/2784442 2021's Best and Worst Cities for People with Disabilities https://wallethub.com/edu/best-worst-cities-for-people-with-disabilities/7164 Register for Big October 2021 https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 216 Guest: Nicole Vasquez Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

RealTalk MS

Episode 216: Open Enrollment with Nicole Vasquez

After reviewing evidence on the use of autologous hematopoietic stem cell transplantation (aHSCT) for the treatment of multiple sclerosis, the National MS Society has concluded that aHSCT is a good treatment option for some people living with MS.  Dr. Jeffrey Cohen, the Director of the Cleveland Clinic's Mellen Center for Multiple Sclerosis Treatment and Research, joins me this week to share all the details about aHSCT and explain who is and who isn't an ideal candidate for this treatment. We'll also tell you about the National MS Society's mini-site that's dedicated to aHSCT.  We have more good news to share about a new category of disease-modifying therapy. There's a new study that may solve some sleep problems associated with MS. We'll tell you how you can participate! And we'll explain why it looks like the National MS Society is now part of the Marvel Universe! We have a lot to talk about! Are you ready for RealTalk MS??! We're in the top 1.5%!!  :22 National MS Society launches stem cell therapy mini-site   1:39 Recruitment completed for Evobrutinib Phase 3 clinical trial  5:16 How you can participate in the iSleepMS study  13:53 Has the National MS Society entered the Marvel Universe???  8:05 Dr. Jeffrey Cohen discusses stem cell therapy for MS   9:49 Share this episode  31:03 Catch Episode 5 of The MS Caregiver Conundrum  31:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/215 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com National MS Society aHSCT Mini-Site https://nationalmssociety.org/aHSCT iSleepMS Online Screening Form https://tinyurl.com/iSleepMS Darkhawk Issue #2https://www.amazon.com/Darkhawk-2-5-Kyle-Higgins-ebook/dp/B097QHWVVD Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 215 Guest: Dr. Jeffrey Cohen Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Stemcells, RealTalkMS Privacy Policy

Episode 215: Stem Cell Therapy for MS with Dr. Jeffrey Cohen

Getting a good night's sleep is often easier said than done.  About half of the people living with MS experience sleep disorders. Dr. Abbey Hughes is joining me to talk about how sleep and lack of sleep affects MS, and she'll share some specific strategies that you can use to better manage sleep difficulties and get the rest that your mind and body require. We're also sharing a very encouraging update on ATA 188, Atara Biotherapeutics experimental stem cell therapy. Investigator Dr. Anthony Traboulsee joins me to share an update on the Phase 2b clinical trial for Tolebrutinib, one of a new class of disease-modifying therapies. We're also talking about the plans to add accessible gym equipment to Planet Fitness locations throughout the U.S. And we'll give you the details and tell you how to register for all the CAN DO MS programs being offered throughout the month of October. We have a lot to talk about! Are you ready for RealTalk MS??! Update on ATA 188 stem cell therapy  1:21 Investigator Dr. Anthony Traboulsee with an update on Tolebrutinib clinical trial   4:02 Planet Fitness is adding accessible gym equipment  12:06 Can Do MS October programs  13:53 Dr. Abbey Hughes discusses overcoming sleep disorders in MS   16:03 Share this episode  29:27 Catch The MS Caregiver Conundrum  29:48 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/214 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com Can Do MS Program Info and Registration https://cando-ms.org/programs Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 214 Guest: Dr. Anthony Traboulsee and Dr. Abbey Hughes Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Episode 214: Managing Sleep and MS with Dr. Abbey Hughes

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. It's often said that MS doesn't just affect individuals, it affects families. And in this special episode of RealTalk MS, we're talking about family involvement in MS care with Dr. Alice Laroni and Trishna Bharadia. Dr. Laroni is a neurologist with over 18 years of experience providing clinical care to MS patients and more than 13 years of experience in neuroimmunological research. Dr. Laroni is also an Assistant Professor of Neurology at the University of Genova. Trishna Bharadia was diagnosed with MS in 2008, at the age of 28. She's a multi-award-winning health advocate and patient engagement advisor dedicated to raising awareness and finding solutions for people living with MS. Both Trishna and Alice are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

Bonus Episode: MS in the 21st Century -- Family Involvement in MS Care with Dr. Alice Laroni and Trishna Bharadia

If you're on an MS disease-modifying therapy and you're concerned about how effective your COVID-19 vaccination might be, or you aren't sure whether having MS qualifies you as being immunocompromised and cleared to receive a third dose of the COVID-19 vaccine, or you can't begin to figure out whether you qualify to receive a COVID-19 booster, then this podcast episode is for you. Joining me to help us make sense of the flurry of recent announcements by the CDC and provide us with an update on his lab's work in looking at the immune response to COVID-19 vaccines among people living with MS who are on b-cell depleting therapies is the Chief of the Division of Multiple Sclerosis and Related Disorders and the Director of the Center for Neuroinflammation and Experimental Therapeutics at the University of Pennsylvania, Dr. Amit Bar-Or. If you're living with MS in the U.K., we'll update you on your eligibility to receive a COVID-19 booster. If you're living with MS in the European Union, we'll update you on the EMA's recommendation of Vumerity, an oral disease-modifying therapy for adults with relapsing-remitting MS. We'll tell you about a drug that's been on the market for over a decade that's been shown to help manage overactive bladder among people living with MS. Imagine having your phone send you an email or text letting you know that you're showing early signs of depression or cognitive dysfunction. We're talking about potentially game-changing technology that Apple is developing for the iPhone.  And we'll share the details of Episode 3 of The MS Caregiver Conundrum, which debuts Thursday, September 30th. Parenting includes its own set of caregiving responsibilities. Imagine adding the additional responsibilities that go with caring for a child with MS. In Episode 3, of The MS Caregiver Conundrum, we'll meet two remarkable moms, each of whom is not only a parent but a caregiver for a child living with pediatric MS. We have a lot to talk about! Are you ready for RealTalk MS??! Vaccine booster shots for people with MS in the U.K.  2:04 Vumerity for people with MS in the European Union?   3:48 Drug helps treat overactive bladder among people with MS  4:30 Apple is developing tech to identify depression and cognitive decline  6:11 Dr. Amit Bar-Or updates us on who gets a COVID-19 vaccine booster, who gets a 3rd dose, and all the rest  8:37 Share this episode  26:50 Catch The MS Caregiver Conundrum  27:10 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/213 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com STUDY: Efficacy of Fesoterodine Fumarate (8 mg) in Neurogenic Detrusor Overactivity Due to Spinal Cord Lesion or Multiple Sclerosis: A Prospective Studyhttps://onlinelibrary.wiley.com/doi/10.1002/nau.24790 Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 213 Guest: Dr. Amit Bar-Or Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Episode 213: COVID-19 Vaccine Booster Update for People Living with MS with Dr. Amit Bar-Or

Early in your MS journey, it's not uncommon to experience minor walking and gait issues. And people living with advanced MS often face more serious mobility challenges. The good news is that rehabilitation can help people on either end of the "mobility spectrum" improve. But different mobility challenges require different approaches to rehabilitation. Joining me to talk about mobility rehabilitation for people who are more recently diagnosed with MS as well as rehabilitation for people living with advanced MS are experts Dr. Herb Karpatkin and Cinda Hugos. RealTalk MS is celebrating its 4th birthday today and we wouldn't be here without you. So before we get too far into this episode, I want to say thank you!! The Black MS Experience Summit gets underway tomorrow. If you haven't yet registered, we'll tell you how. And we'll share the details of Episode 2 of The MS Caregiver Conundrum, which debuts Thursday, September 23rd. When your spouse or partner is the person who's living with MS, you have your role as their caregiver but you also have your role as their significant other -- their partner in the relationship. For a lot of caregivers, trying to balance those two roles can be challenging.  In Episode 2 of The MS Caregiver Conundrum, we'll meet a couple who has not only met that particular challenge, but they've overcome it in amazing fashion.  EJ Levy, the Founder and President of MS Hope for a Cure, joins us with a preview of Big October 2021. This month-long event is designed especially for people affected by MS, and this year, Big October is bigger and better than ever. We'll be sure to tell you how to register for this free event. The National MS Society recently announced an $8.7 million dollar investment in 29 new research training fellowships, early career awards, and other special initiatives. We'll show you how all of these projects align with the MS Society's Pathways to Cures roadmap. We'll even tell you how you can get your own copy of the Pathways to Cures roadmap! We have a lot to talk about! Are you ready for RealTalk MS??! It's our birthday!  :22 Get the details about the Black MS Experience Summit   4:04 The MS Caregiver Conundrum Episode 2 debuts Thursday 9/23  4:51 EJ Levy gives us a preview of Big October 2021  6:46 How the National MS Society's new $8.7 million dollar investment aligns with the Pathways To Cures roadmap  21:18 Dr. Herb Karpatkin and Cinda Hugos discuss mobility rehabilitation early and late in your MS journey  24:25 Share this episode  42:53 Catch The MS Caregiver Conundrum  43:14 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/212 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience Register for Big October 2021https://cvent.me/0Kbo4e?rt=FHc6yg95SUyNOD1m6wi5iw&RefId=Attendee National MS Society New Research Summer 2021 https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Research/New-Research-Summer-2021.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 212 Guest: EJ Levy, Dr. Herb Karpatkin, and Cinda Hugos Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Episode 212: Mobility Rehabilitation Early and Late in Your MS Journey with Dr. Herb Karpatkin and Cinda Hugos

Having a job matters. Most obviously, employment provides the economic resources that people need to more easily manage every other aspect of their lives. Perhaps less obviously, we tend to define ourselves through our work. And without work, we not only face potential economic hardship, we sometimes lose that inner sense of purpose or identity...of understanding who we are. The majority of people living with MS are diagnosed between the ages of 20 and 45. And these are the years when you're often focused on building a career and increasing your earning power.  Many people living with MS decide to leave the workforce prematurely because they aren't aware of all their employment-related options. Like so many other aspects of living with multiple sclerosis, managing your employment requires a strategy. My guest is employment and disability expert Dr. Phillip Rumrill, and we're devoting this entire episode of RealTalk MS to talk about the many aspects of unemployment that people living with MS need to know about. We have a lot to talk about! Are you ready for RealTalk MS??! (If you'd like a little more to talk about, don't miss Episode #1 of The MS Caregiver Conundrum. This week's guest is Kate Washington, author of Already Toast: Caregiving and Burnout in America.) The MS Caregiver Conundrum podcast premieres in 2 days!  :22 Dr. Phillip Rumrill discusses employment and MS   2:11 Share this episode  38:52 Catch The MS Caregiver Conundrum  39:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/211 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com National MS Society: Employment and MS https://www.nationalmssociety.org/Living-Well-With-MS/Work-and-Home/Employment Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 211 Guest: Dr. Phillip Rumrill Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Caregiving RealTalkMS Privacy Policy

Episode 211: The Ins and Outs of Employment and MS with Dr. Phillip Rumrill

Cognitive issues affect a majority of people living with MS and experts often recommend a cognitive assessment as the first step in managing cognitive dysfunction. But what's that cognitive assessment all about? Patient advocate Cathy Chester has been living with MS since 1986 and she just recently underwent her own 3-hour cognitive assessment. Cathy is joining me to walk us through her experience. And if you're wondering what a cognitive assessment is all about and how it might help you, you won't want to miss our conversation. We're also sharing all the details about our new special 8-episode podcast series, The MS Caregiver Conundrum. Episode 1 premieres on September 16th, and you're hearing about it first! We'll get you up to speed on the National MS Society's upcoming Black MS Experience Summit. And we'll tell you about the results of a study that shows how living with both depression and MS can become a matter of life and death. We're also talking about newly published study results that could mean good news for people on anti-cd20 disease-modifying therapies about the efficacy of the COVID-19 mRNA vaccines. We'll tell you about a study that compared the two strategies for choosing your first disease-modifying therapy (and we'll tell you which strategy led to better patient outcomes). And we'll let you know how you can participate in MS research without leaving the comfort and safety of your own home and you might even win a $100 Amazon gift card! We have a lot to talk about! Are you ready for RealTalk MS??! Introducing The MS Caregiver Conundrum podcast  1:32 Get the details about the Black MS Experience Summit   3:34 Study shows that MS + Depression = seriously bad news  4:29 Study reveals robust T-cell response to mRNA vaccines among people on anti-cd20 disease-modifying therapies  9:04 Study offers evidence in the induction vs escalation DMT debate  11:33 A study is looking at complementary and alternative treatments for MS and you can participate  16:20 Cathy Chester shares the details of her cognitive assessment  19:09 Share this episode  32:25 Catch The MS Caregiver Conundrum  32:46 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/210 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The National MS Society Black MS Experience Summit https://nationalmssociety.org/blackmsexperience STUDY: Interface of Multiple Sclerosis, Depression, Vascular Disease, and Mortality: A Population-Based Matched Cohort Study https://n.neurology.org/content/early/2021/09/01/WNL.0000000000012610 Discordant Humoral and T-Cell Immune Response to SARS-Cov-2 Vaccination in People with Multiple Sclerosis on Anti-CD20 Therapy https://www.medrxiv.org/content/10.1101/2021.08.23.21262472v1 Treatment Escalation vs Immediate Initiation of High-Efficacy Treatment for Patients with Relapsing-Remitting Multiple Sclerosis: Data from 2 Different National Strategies https://jamanetwork.com/journals/jamaneurology/fullarticle/2783261 iConquer MS https://iconquerms.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 210 Guest: Cathy Chester Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Episode 210: Getting that Cognitive Assessment with Cathy Chester

Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old young woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison. While we're on the subject of superheroes, we'll tell you about Darkhawk, who debuted last week as the first Marvel superhero to be diagnosed with MS. We're sharing the American Academy of Neurology's COVID-19 vaccine guidance. And we have a very specific message to share with anyone living with MS who is still on the fence about being vaccinated. You'll learn about new NIH-funded research that may extend our understanding of how MS happens. We'll also tell you about a clinical trial getting underway in the U.K. that's exploring whether Mavenclad can slow the worsening of hand and arm function in people with progressive MS.  And we'll share the line-up of no-cost CAN-DO MS virtual programs taking place throughout the month of September. We have a lot to talk about! Are you ready for RealTalk MS??! Darkhawk returns...and this time, he has MS  :22 AAN issues its formal COVID-19 vaccine guidance  2:34 NIH-funded research will examine cell communication in the central nervous system  6:59 CHARIOT-MS clinical trial launches in the U.K.  9:54 CAN-DO MS September programs focus on staying in charge of your life  11:28 My conversation with Madison Copot  13:43 Share this episode  26:52 Download the free RealTalk MS app for your iOS or Android device  27:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/209 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS Darkhawk (2021) Issue 1 https://www.amazon.com/Darkhawk-1-5-Kyle-Higgins-ebook/dp/B095836W91/ COVID-19 and Vaccination in the Setting of Neurologic Disease: An Emerging Issue in Neurology https://n.neurology.org/content/early/2021/07/29/WNL.0000000000012578 ChariotMS Clinical Trial https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/can-cladribine-slow Can-Do MS September Programs https://www.cando-ms.org/programs Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 209 Guest: Madison Copot Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, Marvel, RealTalkMS Privacy Policy

Episode 209: MS Superheroes with Madison Copot

The FDA has authorized a third dose of the COVID-19 mRNA vaccines. What does this mean for people living with MS? Are you eligible for a third dose now? Are you eligible in September? How will your disease-modifying therapy effect that third dose? What if you received the Johnson & Johnson vaccine? And who is that Regeneron monoclonal antibody cocktail for? Dr. Nancy Sicotte joins me with an update on vaccines, variants, boosters, and antibodies, explaining how they all may impact people living with MS. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she is the Women's Guild Distinguished Chair in Neurology and Director of the MS and Neuroimmunology Program. Dr. Sicotte also Chairs the MS Society’s National Medical Advisory Committee and leads its COVID-19 Vaccine Advisory Group. We're also talking with Victoria Holmes, a nurse practitioner who is living with MS. Like some others who are living with MS, Victoria was initially hesitant to get vaccinated. Victoria is joining me to talk about what changed her mind and she has a message to share with others who may still be vaccine-hesitant. We have a lot to talk about! Are you ready for RealTalk MS??! Dr. Nancy Sicotte updates us on COVID-19 vaccines, variants, boosters, antibodies, and more  :22 Victoria Holmes talks about her vaccine hesitancy  29:18 Share this episode  39:13 Download the free RealTalk MS app for your iOS or Android device  39:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/208 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 208 Guest: Dr. Nancy Sicotte and Victoria Holmes Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, RealTalkMS Privacy Policy

Episode 208: COVID-19 Vaccine Update: The Third Dose and MS with Dr. Nancy Sicotte and Victoria Holmes

Imagine being able to see improvement in cognition, motor function, and self-esteem, while enhancing neurological functions like walking and speech without taking another pill or even breaking a sweat. Joining me to talk about the evidence-based benefits that people living with MS can gain through music and art therapy are Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman. We're also talking about the shocking and deeply concerning outcome of a study used to validate the reliability of a new tool to measure MS caregiver abuse. We'll tell you how Zoom is working to make telehealth appointments better for everyone. We're sharing the results of a study that measured the efficacy of a phone-based app to manage anxiety among young people diagnosed with pediatric MS. Think you might like rock-climbing in the Rockies or whitewater kayaking on the Rogue River in Oregon? We'll give you the details of First Descents' 2022 outdoor adventures that are available at no cost to young adults living with MS. And we'll remind you that Burgers to Beat MS is happening in Canada this Thursday. Find out how you can be a part of it no matter where you live! We have a lot to talk about! Are you ready for RealTalk MS??! Burgers to Beat MS happens this Thursday!  :22 STRESS-MS measures MS caregiver abuse  2:46 Zoom is making improvements to telehealth  7:02 An app to reduce anxiety among young people diagnosed with pediatric MS  9:33 Free rock-climbing and whitewater kayaking adventures for young adults living with MS  13:17 Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman discuss how art and music therapy can deliver real benefits to people living with MS  16:58 Share this episode  33:45 Download the free RealTalk MS app for your iOS or Android device  34:05 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/207 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Burgers to Beat MS https://BurgersToBeatMS.ca STUDY: Validity and Reliability of the Scale to Report Emotional Stress Signs -- Multiple Sclerosis (STRESS-MS) https://meridian.allenpress.com/ijmsc/article/doi/10.7224/1537-2073.2020-016/467361/Validity-and-Reliability-of-the-Scale-to-Report STUDY: Mobile Attention Bias Modification Training Is a Digital Health Solution for Managing Distress in Multiple Sclerosis: A Pilot Study in Pediatric Onset https://www.frontiersin.org/articles/10.3389/fneur.2021.719090/full First Descents Outdoor Adventure Program Application https://firstdescents.org/programs/programs-application/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 207 Guest: Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Episode 207: The Benefits of Art and Music Therapy in MS with Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman

If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes: $10 Million increase in funding for the Congressionally-Directed MS Research Program $3 Billion increase in funding for the National Institutes of Health Sustained funding for the CDC's National Neurological Conditions Surveillance System (studying MS is one of the first 2 pilot projects for this new program) Passage of the CREATES Act (designed to lower prices and increase competitiveness in generic drug development) Beyond these milestone achievements, advocating on behalf of your own interests is a personally empowering experience. Joining me to talk about what advocacy is all about is MS Activist Jenna Green. We're also sharing the details of a clinical trial that measured the effects of the Wahls Diet and the Swank Diet on MS-related fatigue and quality of life. We'll tell you about a study that identified a potential biomarker for MS-related cognitive decline. We're talking about the FDA approval of Botox as a treatment for upper-limb spasticity. And we'll let you know how you can support the MS Society of Canada by buying a burger. We have a lot to talk about! Are you ready for RealTalk MS??! This part is all about you  :22 Study measures the effects of Wahls Diet and Swank Diet on MS-related fatigue and quality of life  4:03 Study identifies potential biomarker for MS-related cognitive decline   6:58 FDA approves Botox for managing upper-limb spasticity  10:35 A&W's Burgers to Beat MS benefits MS Society of Canada  11:34 MS Activist Jenna Green talks about what advocacy means and why it matters  14:05 Share this episode  31:46 Download the free RealTalk MS app for your iOS or Android device  32:06 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/206 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Advocate for Change -- Be an MS Activist https://nationalmssociety.org/advocacy STUDY: Impact of the Swank and Wahls Elimination Dietary Interventions on Fatigue and Quality of Life in Relapsing-Remitting Multiple Sclerosis: The WAVES Randomized Parallel-Arm Clinical Trialhttps://journals.sagepub.com/doi/10.1177/20552173211035399 STUDY: Cognitive Decline in Multiple Sclerosis is Related to the Progression of Retinal Atrophy and Presence of Oligoclonal Bands: A 5-Year Follow-Up Studyhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8315759/ Updated Botox label information https://media.allergan.com/actavis/actavis/media/allergan-pdf-documents/product-prescribing/20190620-BOTOX-100-and-200-Units-v3-0USPI1145-v2-0MG1145.pdf Burgers to Beat MS https://BurgerstoBeatMS.ca Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 206 Guest: Jenna Green Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS Privacy Policy

Episode 206: The Importance of Advocacy with MS Activist Jenna Green

If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes: $10 Million increase in funding for the Congressionally-Directed MS Research Program $3 Billion increase in funding for the National Institutes of Health Sustained funding for the CDC's National Neurological Conditions Surveillance System (studying MS is one of the first 2 pilot projects for this new program) Passage of the CREATES Act (designed to lower prices and increase competitiveness in generic drug development) Beyond these milestone achievements, advocating on behalf of your own interests is a personally empowering experience. Joining me to talk about what advocacy is all about is MS Activist Jenna Green. We're also sharing the details of a clinical trial that measured the effects of the Wahls Diet and the Swank Diet on MS-related fatigue and quality of life. We'll tell you about a study that identified a potential biomarker for MS-related cognitive decline. We're talking about the FDA approval of Botox as a treatment for upper-limb spasticity. And we'll let you know how you can support the MS Society of Canada by buying a burger. We have a lot to talk about! Are you ready for RealTalk MS??! This part is all about you  :22 Study measures the effects of Wahls Diet and Swank Diet on MS-related fatigue and quality of life  4:03 Study identifies potential biomarker for MS-related cognitive decline   6:58 FDA approves Botox for managing upper-limb spasticity  10:35 A&W's Burgers to Beat MS benefits MS Society of Canada  11:34 MS Activist Jenna Green talks about what advocacy means and why it matters  14:05 Share this episode  31:46 Download the free RealTalk MS app for your iOS or Android device  32:06 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/206 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Advocate for Change -- Be an MS Activist https://nationalmssociety.org/advocacy STUDY: Impact of the Swank and Wahls Elimination Dietary Interventions on Fatigue and Quality of Life in Relapsing-Remitting Multiple Sclerosis: The WAVES Randomized Parallel-Arm Clinical Trialhttps://journals.sagepub.com/doi/10.1177/20552173211035399 STUDY: Cognitive Decline in Multiple Sclerosis is Related to the Progression of Retinal Atrophy and Presence of Oligoclonal Bands: A 5-Year Follow-Up Studyhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8315759/ Updated Botox label information https://www.accessdata.fda.gov/drugsatfda_docs/label/2019/103000s5309lbl.pdf Burgers to Beat MS https://BurgerstoBeatMS.ca Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 206 Guest: Jenna Green Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS Privacy Policy

Just a few weeks ago, life sciences company Abata Therapeutics came out of stealth mode, unveiling a $95 million dollar investment in a novel cell therapy to treat progressive MS. Joining me to talk about this potentially transformational treatment for progressive MS are the President and CEO of Abata Therapeutics, Samantha Singer, and Dr. Richard Ransohoff, one of the company's co-founders as well as its Chief Medical Officer. We'll also give you a sneak peek at a study that measured the impact of COVID-19 on people with MS in New York City. We'll tell you about a study that examined the viability of at-home Tysabri infusions. We'll share the details of the Can Do MS virtual programs that are happening all month long. And we'll let you know how you can attend Dawnia Baynes's celebration for the entire MS community (did we mention that it's taking place in a very cool virtual world?!!!). We have a lot to talk about! Are you ready for RealTalk MS??! Abata Therapeutics unveils potentially transformational cell therapy for progressive MS  :22 Study measures effects of COVID-19 on people with MS in New York City   11:18 Study examines the viability of at-home Tysabri infusions   14:26 Can Do MS virtual programs for August  16:04 Award-winning MS activist and support group leader Dawnia Baynes is throwing a party -- and you're invited  17:51 Share this episode  30:44 Download the free RealTalk MS app for your iOS or Android device  31:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/205 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Abata Therapeuticshttps://abatatx.com/ STUDY: Home Infusions of Natalizumab for People with Multiple Sclerosis: A Pilot Randomised Crossover Trialhttps://onlinelibrary.wiley.com/doi/10.1002/acn3.51410 Can Do MS August Program Info and Registration https://cando-ms.org/programs Dawnia's "15" Celebrationhttps://15presentedbybrightside365.eventbrite.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 205 Guest: Samantha Singer, Dr. Richard Ransohoff, Dawnia Baynes Tags: MS, MultipleSclerosis, MSResearch, MSSociety, AbataTherapeutics, RealTalkMS Privacy Policy

Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff

Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. -- more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance. At the same time, the conversation about putting the patient at the center of MS research has grown louder and more pronounced. Major pharmaceutical companies have gotten both of these messages and joining me to talk about increasing diversity and ensuring patient-centricity in MS clinical research is Tanja Keiper, Director in the Clinical Delivery Unit of EMD Serono. We'll also update you on the progress that MS activists are making as our key legislative issues work their way through Congress. We'll tell you about an interesting study about stress triggers and the stress coping mechanisms most often used by people living with MS. We're talking about a smartphone app that, one day, might provide your neurologist with a digital biomarker of MS-related cognitive changes. And we'll share the details of a powerful new supercomputer that's busy studying multiple sclerosis so that it can create brand new MS therapies. We have a lot to talk about! Are you ready for RealTalk MS??! MS advocacy update  :22 Study looks at stress triggers and stress coping mechanisms among people living with MS   5:52 A smartphone app to measure MS-related cognitive changes  9:20 A powerful new supercomputer is trying to figure out MS  11:41 Tanja Keiper talks about how EMD Serono is working to increase diversity and ensure patient-centricity in MS clinical research  14:29 Share this episode  27:04 Download the free RealTalk MS app for your iOS or Android device  27:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/204 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients  https://www.dovepress.com/the-role-of-stress-perception-and-coping-with-stress-and-the-quality-o-peer-reviewed-fulltext-article-PRBM p>STUDY: Reliability, Construct, and Concurrent Validity of a Smartphone-Based Cognition Test in Multiple Sclerosishttps://journals.sagepub.com/doi/10.1177/13524585211018103 evolutionRMS Studieshttps://www.evolutionstudies.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 204 Guest: Tanja Keiper Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EMDSerono, RealTalkMS Privacy Policy

Episode 204: Creating Greater Diversity and Ensuring Patient-Centricity in MS Clinical Research with Tanja Keiper

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

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