Selective (or "Picky") eaters are common in Pediatrics.  Many parents receive advice on how to manage but what does the data show?  Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to discuss this very important topic. Resources Tips for Feeding Picky Eaters - HealthyChildren.org Child of Mine: Feeding with Love and Good Sense, Revised and Updated Edition: Satter, Ellyn: 8601419522477: Amazon.com: Books Fearless Feeding: How to Raise Healthy Eaters From High Chair to High School: Jacobsen, Maryann, Castle, Jill: 9781732866201: Amazon.com: Books Join Us!If you would like to partner in the work of the Down Syndrome Center, please visit http://www.givetochildrens.org/downsyndrome.  Thank you! Podcast photo credit: Getty Images

Down Syndrome Center of Western Pennsylvania Podcast

#115 - Approach to Selective ("Picky") Eaters

World-reknowned expert and author on mental health and wellness in people with Down syndrome, Dennis McGuire, joined the podcast today to talk about common (and usually normal) behaviors in older children and adults with Down syndrome. RESOURCES Mental Wellness in Adults with Down Syndrome (Book) Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges - Woodbine House If People with Down Syndrome Ruled the World (Essay) National Association for Down Syndrome | If People with Down Syndrome Ruled the World (nads.org) If you have benefitted from this podcast, please consider partnering in the work of the Down Syndrome Center at: http://www.givetochildrens.org/downsyndrome.

#114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire)

Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania.  She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please consider partnering in the work of the Down Syndrome Center by visiting http://www.givetochildrens.org/downsyndrome 

#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria)

Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome. Pittsburgh Vaccine Trials Unit https://covid19research.pitt.edu/pvtu CDC COVID Data https://www.cdc.gov/coronavirus/2019-ncov/index.html

#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)

Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.

#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT))

Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year.  

#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk)

Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches. Resources: http://adscresources.advocatehealth.com Mental wellness in Ds book Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges: Dennis McGuire, Brian Chicoine: 9781606132852: Amazon.com: Books Out of Sync Child Series The Out-of-Sync Child Series (3 books) Kindle Edition (amazon.com) Sensational Kids Lucy Miller Amazon.com : sensational child STAR Institute Sensory Processing - STAR Institute (sensoryhealth.org)

#109 - Sensory Processing in Ds (with Dr. Katie Frank)

Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome.   For more information, please see the article discussed: Pain perception in people with Down syndrome: a synthesis of clinical and experimental research (nih.gov)

#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker)

Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI).   For parents/caregivers: Children with Down Syndrome: Health Care Information for Families - HealthyChildren.org For healthcare professionals: Health Supervision for Children With Down Syndrome | American Academy of Pediatrics (aappublications.org)

#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull)

Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds.  If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU.  

#106 - COVID and Mental Health in Ds (with Dr. Ruth Browh)

Dr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International.  Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.

#105 - Hearts of Joy International

Dr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy.  They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved. https://www.ndsccenter.org/support-get-involved/campaign/

#104 - Become an Ally for Advocacy (with Jawanda and Rachel Mast)

In our ongoing goal to keep you up-to-date with the latest changes in the COVID-19 pandemic, Dr. Nowalk joined the podcast again today to discuss COVID vaccination in children with Down syndrome down to 12 years old.  Dr. Nowalk also addressed the latest CDC guidelines on vaccinated individuals being mask-free in public settings.

#103 - COVID Vaccination in Children with Ds (with Dr. Andrew Nowalk)

Listen as Dr. Vellody answers yet another listener question, this time discussing orthodontic care with Dr. Lindsay Schuster.   Dr. Lindsay Schuster, DMD, MS - Pittsburgh, PA - Orthodontics and Dentofacial Orthopedics - Book Appointment (upmc.com)

#102 - Orthodontic Care (with Dr. Lindsay Schuster)

Dr. Vellody is joined by Sarah Hill who is the Convention Director for the National Down Syndrome Congress.  The 2021 NDSC Convention is a one-of-a-kind opportunity for families and self-advocates to get information on Down syndrome.  This year's NDSC Convention will be virtual and offer loads of opportunities for attendees that are discussed on this podcast.  To learn more or to register for the NDSC Convention, go to https://www.ndsccenter.org/annual-convention/.

#101 - 2021 NDSC Convention (with Sarah Hill)

This is the podcast series for the Down Syndrome Center of Western Pennsylvania at Children's Hospital of Pittsburgh of UPMC.

hubhopper

Down Syndrome Center of Western Pennsylvania Podcast

hubhopper