Today’s on Get Social Health we’re talking about a project called My MG Sole. It's new collective art project designed specifically for people with Myasthenia Gravis, a rare autoimmune condition. The goal of the project is to help people in the MG community defy social distancing by uniting as a community online. In this time of intense social distancing, the separation of those with chronic illnesses, like MG, from their family, friends and community - who understand what they may be experiencing - can feel more like extreme social isolation.  The project is sponsored by Argenx, (Are Gen X) a Boston based biotechnology company developing treatments for severe autoimmune diseases. With me here today are Annalise Hammerlund, an Expressive Arts Therapist and Mental Health Counselor from Grand Rapids, Michigan. Also joining the podcast is Susan Woolner. She is the Neuroscience Patient and Caregiver Support and Community Manager for Mercy Health Hauenstein Neurosciences

Get Social Health with Janet Kennedy

My MG Sole Project

For all my Digital Health listeners, I wanted to share this interview with Jen Goldsack of the DiMe Society from the "People Always, Patients Sometimes" podcast. This podcast is a production of Spencer Health Solutions (full disclosure: my day-job!). Our podcast focuses on the innovators, thought leaders and patient influencers who are demanding change now in clinical trials The Digital Medicine Society is a group of individuals who are committed to innovating and transforming how digital apps, medical devices, software and processes can positively impact healthcare and clinical trials. Since Jen handles all my questions so well, it didn't make sense to repeat the same interview for Get Social Health. Here is the interview and transcript from my interview with Jen Goldsack about the DiMe Society on the "People Always, Patients Sometimes" podcast. The DiMe Society – Jen Goldsack It’s time to discuss the digitalization and democratization of medicine so we invited Jennifer Goldsack to join us on the “People Always, Patients Sometimes” podcast.  Jennifer is the interim executive director of the DiMe Society, pronounced like the coin, an abbreviation of the Digital Medicine Society.  In our discussion, Jennifer spoke about the “trans-disciplinary nature of digital medicine as a field” and how, without professionals from every field at the table, the healthcare community will make mistakes and under-deliver on possible treatments for the individual.  As a nonprofit, Jennifer explained that “we do welcome all comers” at the DiMe Society – unlike other organizations, the DiMe Society charges individuals only $50 for membership, creating a low barrier of entry and ensuring accessibility to everyone. The DiMe Society was created with the mission to facilitate interdisciplinary collaboration between professionals within the global healthcare and technology communities in their research, teaching, and promotion of best practices in medicine.  The DiMe Society believes that everyone has something to contribute to the advancement of medicine, from white-hat hackers, engineers, and clinicians to citizen scientists.  Founded earlier this year, the DiMe Society already has around 700 members from 24 countries after only 5 months of opening their doors. To learn more about how Jennifer and the DiMe Society cultivate collaboration in the field of digital medicine, click on the link and listen to this week’s episode of People Always, Patients Sometimes, hosted by Janet Kennedy.  

The Digital Medicine Society

Health literacy is a relatively new term that is getting a lot of attention, but what does it mean? Does it have to do with reading ability or reading comprehension? Is it the responsibility of the healthcare provider or the patient? October is Health Literacy Month, so we're going to learn more about the meaning of health literacy from Lori Hall, director of global health literacy for Eli Lilly on Get Social Health. On the start of Lori's career: "In my career in nursing, I started out in the newborn intensive care unit. It was a wonderful opportunity to make a difference every day for patients and parents have these tiny little newborns. Although I didn't know about health literacy or health education then, I think it really had a strong presence even in the mid-eighties when I started my career. And that's been a common thread throughout the roles that I've had in healthcare. I look back at that common thread often now and recognize how I've been able to pull something from each of those experiences. That served me really well today in my role as the advisor of global health literacy." More information: Health Literacy - Extruded Cornstarch Emulsifier? Health Literacy - Medical Information Health Literacy Month Lilly Trials - Word of the Day Roundtable on Health Literacy Contact Lori LinkedIn

Lori Hall Health Literacy Month

Dave DeBronkart - ePatient Dave

Lilly Stairs Patient Advocate

Ajay Prasad GMR Webteam

Seth Rotberg - Huntington's Disease Patient Advocate

Forced From Home Exhibition Immigration is on everyone’s mind right now. As with so many current issues, knowledge of how this global social problem impacts individuals is misunderstood or even unknown. Recently I had the opportunity to tour the national exhibition, Forced From Home, presented by Doctors Without Borders during its stop in Charlotte, North Carolina. I was graciously given a tour of the exhibition that included interactive activities designed to convey the challenges facing the more than 68.5 million people currently forced from their homes. I saw a re-creation of a refugee’s journey demonstrating the dangers, deprivations, and uncertainties faced by men, women, and children in the millions worldwide every day. My tour guides were Courtney Ridgway, Erin Ching, and Dr. George Record. As we walked between exhibit stations, they shared the purpose of the Forced From Home exhibition and answered all my questions. An audio podcast can’t fully reveal how moving this program was, so I hope you’ll visit the show notes for photos from the program and more information. DETAILS: The Forced From Home exhibition offers free, one-hour guided tours with experienced Doctors Without Borders aid workers. Visitors travel through an immersive exhibition featuring a virtual reality (VR) experience, a 360-degree video dome, and interactive activities designed to convey the challenges facing the more than 68.5 million people currently forced from their homes. Website Facebook Twitter Instagram 

Doctors Without Borders

Jacob Weiss

Marie Ennis-O'Connor

Susannah Fox – Healthcare and Social Media

Michael Sengbusch - Facebook and Healthcare

I'm happy to be back behind the microphone after a hiatus to focus on building the Healthcare Marketing Network with my business partner Carol Bush. We'll be covering what's happening with our company in an upcoming episode. Today's conversation is with Jim Higgins, the CEO of Solutionreach. We were introduced by Lea Chatham,  a healthcare writer and editor and the Director of Content Marketing for Solutionreach. Knowing my interested in healthcare communications, Lea suggested I speak with Jim about their platform and the need physicians practices have for intelligent patient communications. Listen to the episode: 00:56 Intro: Meet Jim Higgins, CEO of Solutionreach 01:41 Solutionreach launched 17 years 02:21 About the Solutionreach platform 05:18 A patient portal: yes or no? 06:51 Comparative experience with other platforms 11:01 Managing your life as a healthcare worker 14:13 Keeping up with patient communication 17:32 Is this a clinical tool or marketing tool? 20:26 The need for content curating for healthcare practices 21:57 Describing the platform layout 25:01 Patient portal usage rates 26:56 Add-on or independent platform? 29:57 Millennial communications 33:36 Patient feedback on practices 36:01 Applying it to Facebook 39:46 Encouraging 43:45 Social Media Tip, Todd Eury, The Pharmacy Podcast. Twitter & the power of the Hashtag 44:39 Closing message: Healthcare Marketing Network - connecting healthcare and medical writers to companies and practices. Connect with Solutionreach Website Twitter Facebook LinkedIn company page  

Jim Higgins, Solutionreach

David Harlow, Lawyer, Social Media Guru, and Blogger has been a guest on the Get Social Health podcast before. Guess what? I have more questions! As a member of the Mayo Clinic Social Media Network's External Advisory Board, David graciously agreed to come back on the podcast and talk about what has changed in social media and healthcare in the past 2 1/2 years. Listen to the podcast or drop in at the time stamps below. 00:54  Intro 01:33  A Lawyer?! 04:29  Comprehending the tech 06:35  Covering the bases 07:29  Active with start-ups 07:51  You and the Mayo 08:37  Optional involvement in social media 10:31  Why the holdouts? 11:50  How do you get involved 12:56  Mayo Clinic annual conference 16:27  Personal life and HR impact 19:01  Professionalism is 24/7 22:05  Patient privacy in a crisis 26:15  When family isn't your family 28:18  Planned vs spontaneous content 29:35  Authenticity with patients 32:15  Concerning email lists in marketing 36:55  End 38:06  Social Media Tip from Dr. Mike Sevilla 39:10  Closing: Healthcare Writers Network is available to help you! Below are links to a number of David's blogs, projects and social media activity: Two posts about the marketing ramificationshttps://twitter.com/healthblawg of the HIPAA/HITECH Omnibus Rule: "HIPAA Clarity: Do You Have to Sue HHS to Get It?" "HIPAA Marketing Rule Guidance: Better Than Nothing" Health Wonk Review Twitter LinkedIn 

David Harlow - Legal and Healthcare Social Media

Content creation is critical to an effective hospital marketing plan. On the Get Social Health podcast, I chat with Jeff Calaway about the creation of a newsroom-style PR department for Cook Children's Hospital. By operating as a newsroom, the hospital communications team was positioned to take advantage of health-related stories in the news. To find out how listen to the podcast or drop in at the time stamps below.   00:51  Intro 01:18  About Jeff 04:09  Mobility & flexibility 07:35  Telling personal stories 10:07  Involving your staff 13:06  Evergreen vs live news 15:34  "Newsjacking?" 17:08  Timely posting on current events 20:12  Spontaneous vs oversight 24:20  Physicians who produce social content 27:19  Accuracy vs accessibility 28:32  End 29:18  Social Media Tip Mari Smith 30:01  Closing   Connect with Jeff: Jeff Calaway, Senior Content Specialist: Twitter: https://twitter.com/JeffCalaway LinkedIn: https://www.linkedin.com/in/jeff-calaway-36097a74/   The Cook Children's Marketing & PR Team Justin Smith, Medical Advisor for Digital Health/Primary Care Innovator, Twitter: @TheDocSmitty Wini King, AVP, Public Relations, Twitter: @PRKing1210 Missy Staben, Manager of Digital Communications, @Missy Staben Kim Brown, Media Relations Specialist, Twitter: @KimatCook Abigail Hodgson, Social Media Specialist, Twitter: flabigaill The story doing well in India: http://www.checkupnewsroom.com/5-days-of-fever-now-what-should-i-do/ India is their third biggest country in audience readership behind U.S. and U.K. The story now has more than 10k views since it was published in June 2015. It has more than 140,000 total views. Our Selena Gomez Trilogy: 7 Questions Answered about a Kidney Transplant Surgery http://www.checkupnewsroom.com/7-questions-answered-about-a-kidney-transplant-surgery/ 8 facts about lupus http://www.checkupnewsroom.com/8-facts-about-lupus/ 13 Reasons Why You Should Be Concerned Your Child May Attempt Suicide http://www.checkupnewsroom.com/13-reasons-why-you-should-be-concerned-your-child-may-attempt-suicide/ 

Jeff Calaway - Creating a Hospital Newsroom

Get Social Health is a program about social media and how it’s being used to help hospitals, medical practices, healthcare practitioners and patients connect and engage via social media. Get Social Health presents conversations with professionals actively working in the field and provides real-life examples of healthcare social media in action. You'll hear how Facebook, YouTube, Instagram, Pinterest, LinkedIn, Twitter and other social media platforms are being used to build community, educate and inform.

hubhopper

Get Social Health with Janet Kennedy

hubhopper