Monica (Explicitly Sick), Jason (Discomfort Zone) Jason from Discomfort Zone and Monica Michelle from Explicitly Sick have an open chat about what it is like to have a setback on your chronic illness protocol. Monica Michelle who has Ehlers Danlos had a setback this week while using the Ehlers Danlos Protocol, The Muldowney Method. Jason had a set back with a knee injury. They discuss frustrations and tools to get back. Redefine what success is. How Elizabeth Gilbert's book Big Magic applies to chronic illness and disability. Why Smart Crutches are the best. Whether to financially invest in one's setback with money, time, or effort._____PLEASE SHARE ? RATE & REVIEW ?DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICK WITH MONICAHUMANCARE WITH EVADISCOMFORT ZONE WITH JASONSEX AND CHRONIC ILLNESS WITH DR. LEECHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK@INVISIBLENOTBROKENBE KIND. BE GENTLE. BE BADASS. See acast.com/privacy for privacy and opt-out information.

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Roundtable - Setbacks and Chronic Illness with Jason and Monica

Jason And Monica Talk Setbacks in Chronic Illness

Ableism comes in all shapes and sizes AND we experience it both internally and externally. Monica (Explicitly Sick), Eva (Humancare), and Jason (Discomfort Zone) talk about how they have experienced and dealt with ableism personally as well as give advice on what could work for others…plus other stuff around chronic illness and crap :pTRANSCRIPT HERE (it's not fab, but hopefully it does the job, sorry!)Finding the people that won't tell you you're crazyAll about mobility aids and our perceptions of them vs. the perception of othersgadgets that help us (ex: reMarkable tablet - not a paid promo, just love it!)“Do I deserve this?” - what we ask when we spend money on ourselvesGaslighting Travel adaptationsAbleism in healthcareEquitable vs. Fair (“everyone gets the same” vs. “everyone gets what’s needed”)3 last pieces of advice (1 hour in)“Taking care of yourself is not losing ground ex) if you decide you need a wheelchair, you are not taking a step back, you are not losing power. I wish someone told me that a decade ago” - Monica“Battle ableism first starts with how you receive things yourself. there is a lot you can do internally that will help you battle that in your outside world.” - Eva“Gaslighting is tough - especially with family and personal relationships. There are certain times when it can be really intense, and at times you need to give yourself distance from that person… it may be the right decision to cut them out of your life… [at the same time] it’s often people who are incredibly well-intentioned and good people…so take that into consideration.” - JasonStay tunes for Ableism - Part 2! (Which will include Dr. Lee)How have you experienced ableism - internally and externally? Let us know what works for you in our Facebook Group!**ALSO, BIG ANNOUNCEMENT!Monica and Jason are both seeking your stories on gaslighting. These stories could be a part of a long-form audio story or in Monica's Magazine. Send us an email at contact@invisiblenotbroken.com with a written or oral summary of your story. In the subject line, please write "gaslighting stories" as well as your country of residence._____PLEASE SHARE ? RATE & REVIEW ?DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICK WITH MONICAHUMANCARE WITH EVADISCOMFORT ZONE WITH JASONSEX AND CHRONIC ILLNESS WITH DR. LEECHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK@INVISIBLENOTBROKENBE KIND. BE GENTLE. BE BADASS. See acast.com/privacy for privacy and opt-out information.

Roundtable - Ableism (Part 1) with Monica, Eva and Jason

Chronic illness is a marathon and not a sprint! Monica (Explicitly Sick) and Jason (Discomfort Zone) talk about how they cope with chronic illness and other life bullshit:Finding the people that won't tell you you're crazyPets that both comfort and injure MonicaMeditating when you can't sit stillDenial! YES, denial is a perfectly legitimate coping response, and never let anyone tell you otherwise :)Do you have coping strategies that you'd like to share? Let us know what works for you in our Facebook Group!**ALSO, BIG ANNOUNCEMENT: Monica and Jason are both seeking your stories on gaslighting. These stories could be a part of a long-form audio story or in Monica's Magazine. Send us an email at contact@invisiblenotbroken.com with a written or oral summary of your story. In the subject line, please write "gaslighting stories" as well as your country of residence._____PLEASE SHARE ? RATE & REVIEW ?DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICK WITH MONICAHUMANCARE WITH EVADISCOMFORT ZONE WITH JASONSEX AND CHRONIC ILLNESS WITH DR. LEECHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK@INVISIBLENOTBROKENBE KIND. BE GENTLE. BE BADASS. See acast.com/privacy for privacy and opt-out information.

Roundtable: Weathering the Storm with Monica and Jason

Hello Humancare community. I have a very special announcement. I am finally launching a new collaborative segment of the podcast, a project I've been dreaming of putting out there for years now, and it requires your participation to come to life: Humancare Stories. An awareness and conflict resolution project. The Humancare Stories segment will be a collection of anonymously contributed stories from listeners like you, about negative interactions experienced within the context of healthcare – whether that be an interaction with a patient, provider, loved one, or stranger. For example, submitted stories could be about a disheartening dialogue with a doctor, an offensive conversation with a romantic partner, or even an infuriating exchange with someone in a waiting room. Essentially any person-to-person interaction related to one’s health journey. After the submission of a story through voice recording, these stories are validated and dissected before being published on the Humancare podcast. (All submissions, will be reviewed although only a select few stories will be chosen to be published.) For those that are, these episodes will begin by playing the original recording of the story. Then as the host, I will analyze “what happened” from both a factual and experiential viewpoint. From there, I will present to you, the listeners, thought-provoking reflection questions paired with insights from a board of advocates, as well as tools and suggested resources – all of which aim to stimulate a potentially different way of looking at the story told that best serves both parties involved. The purpose is to be both supportive and proactive. It isn’t about choosing sides. It isn’t about being right or wrong.It’s about shedding the labels. It’s about removing the ego. It's about seeing one’s self as human, seeing that other person as human – as awful as the interaction may have been - and finding a common ground as two humans. I am looking to encourage listeners, like you, to adopt tools to mentally, emotionally and physically prepare you for similar situations in your lives going forward. I hope to provide you with alternative options in terms of actions and reactions so that you can feel a greater sense of control going forward. I believe that if we individually shift our approach to these often angering, upsetting, frustrating interactions, that we can collectively and collaboratively shift the broken relationship dynamics within healthcare as a whole. Again, it isn’t about choosing sides. It isn’t about blame or shame. No one wins in these interactions. No one. The way we approach these difficult conversations need to change.You know it. I know it. We all know it. At the end of the day, relationships in the context of healthcare are between two humans just like any relationship. And that’s ultimately the purpose of this project: to humanize healthcare first through humanizing our stories.If you are open to sharing your story with the community, text “I want to share my story” to 585-484-0232. From there I will send you the submission requirements. While I will need to be in contact with you to receive your recording, all stories will be published anonymously. Thanks again for being supporters of the Humancare podcast and our mission to humanize healthcare. See acast.com/privacy for privacy and opt-out information.

Announcement from HumanCare: Call for stories!

2020 IN REVIEW (WTF)Eva (HUMANCARE), Monica (EXPLICITLY SICK), Jason (DISCOMFORT ZONE) and Dr. Lee (SEX & CHRONIC ILLNESS) digest the good, the bad and the super f*ing ugly, upsetting "wtf" moments of 2020...but not without some positive flair!We also talk about silver linings, learnings and what's to come in 2021! ____JOIN OUR FACEBOOK GROUP, YA’LL! WE’RE A HOOT :P_____PLEASE SHARE ? RATE & REVIEW ?DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICK WITH MONICAHUMANCARE WITH EVADISCOMFORT ZONE WITH JASONSEX AND CHRONIC ILLNESS WITH DR. LEECHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK BE KIND. BE GENTLE. BE BADASS. See acast.com/privacy for privacy and opt-out information.

Roundtable – 2020 in Review (WTF): with Monica, Eva, Jason and Dr. Lee

THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle.In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experiences when one has a chronic illness. Links/suggestions mentioned:﻿Monica's other podcast - "I Can't Believe That Happened" PodcastLibby: https://meet.libbyapp.com/ - "Did you know your local library has thousands of ebooks and audiobooks? You can borrow them, instantly, for free, using just the device in your hand."Scrivener: https://apps.apple.com/us/app/scrivener/id972387337 - "Scrivener is the go-to app for writers of all kinds, used every day by best-selling novelists, screenwriters, non-fiction writers, students, academics, lawyers, journalists, translators and more."Movies/TV showsHouseHow I Met Your MotherFriendsSex and the CityDiagnosis (documentary)PLEASE SHARE ? RATE & REVIEW ?DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICK WITH MONICAHUMANCARE WITH EVADISCOMFORT ZONE WITH JASONSEX AND CHRONIC ILLNESS WITH DR. LEECHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK BE KIND. BE GENTLE. BE BADASS. See acast.com/privacy for privacy and opt-out information.

Roundtable - Throwback to Ep 100! Managing from Mattress: Monica and Eva

Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability!JOIN INB NETWORK HOSTS MONICA (EXPLICITLY SICK), EVA (HUMANCARE) & JASON (DISCOMFORT ZONE) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS.“A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode:*No sponsorships, personal recommendations only!*Rower machineShort stories, like “Disability Visibility” and Kelly Link (surreal fiction)VR headset – the OculusPhotobook (google photos or Shutterfly)Fancy journals, like Passion PlannerGratitude letters to friends and familyDigital Cards (TouchNote)Insomnia Cookies!Masterclass (current sale of two for one!) – check out ‘Gangster Gardener’ PLEASE SHARE ? RATE & REVIEW ?Don’t forget to listen & subscribe to each of our podcasts :Explicitly Sick with MonicaHumancare with EvaDiscomfort Zone with JasonSex and Chronic Illness with Dr. LeeCheck out our official Invisible Not Broken Facebook Page and our INSTAGRAMS!@humancare_podcast@drleephillips@dzonepodcast@explicitlysick be kind. be gentle. be badass. See acast.com/privacy for privacy and opt-out information.

Roundtable - Spoonie Gifting: Monica, Eva and Jason

Join Monica, Eva and Dr. Lee for an untamed discussion on politics, human rights, family dynamics and, oh yeah, some holiday stuff thrown in there :p"Take it or leave it - I have an opinion" (all of us in a nutshell)Just a taste of what we talk about:Election results & compassion for human rightsLove languages, sex and the "diamond rule" vs. the golden ruleManaging relatives Boundaries around people, food, information, and other overwhelming topicsRealities of the risk of gatherings during Covid-19References made during the episode:Love LanguagesUntamed by Glennon Doyle Carnivore Diet "I'll debate anything except for someones ability to live with dignity...the baseline is that everyone should be able to have a life and live it with dignity, and if you can't agree with that then I dont think there is enough of a foundation for us to even have a conversation" - Monica MichellePLEASE SHARE ? RATE & REVIEW ?Don’t forget to listen & subscribe to each of our podcasts :Explicitly Sick with MonicaHumancare with EvaDiscomfort Zone with JasonSex and Chronic Illness with Dr. LeeCheck out our official Invisible Not Broken Facebook Page and our INSTAGRAMS!@humancare_podcast@drleephillips@dzonepodcast@explicitlysick See acast.com/privacy for privacy and opt-out information.

Roundtable - Holiday Survival Tips (Holding Nothing Back!)

The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain."Explicitly Sick Podcast" with Monica Michelle + "Wellacopia Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass.

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Invisible Not Broken - Chronic Illness Podcast Network

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