How I met Kate Bryan, the 1 Girl Revolution.    A mutual friend told Kate about me and The Bonnell Foundation.  I was still a news reporter at WWJ, and working on my Foundation.  Kate came to my house to record the podcast and we hit it off!  Kate has terrific energy and is doing amazing stories on her 1 Girl Revolution podcasts. Kate has an Emmy-Nominated short documentary “The Girl Inside” about incarcerated women.  You can also her the incarcerated women on Kate's podcast series.  Go Kate!    1 Girl Revolution Website and Podcast: https://1girlrevolution.com/For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Living With Cystic Fibrosis

Kate Bryan of 1 Girl Revolution

CF Dad's have a lot to say!  They don't gather like CF Mom's do (on zoom or at a gathering), but they do have a lot on their minds.  It was wonderful to get my husband Joseph Bonnell and Pastor David Hoffman together to talk about how Dad's think, and what gets them talking about CF.  The conversation began after a Dad's retreat couldn't gather enough Dad's to hold the conference, and so we started talking!  If you're interested in talking to Joe or Pastor David, please shoot us an email and we will connect you!For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.com For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

CF Dad's have a lot to say!

Fifty one year old Chris MacLeod has lived a life of lessons, and he wants to share them with you in his new book, "Beating the odds". His life began with a heart condition and then cystic fibrosis diagnosis.  As an attorney he fought for clients sometimes while he was on oxygen.  His incredible story about remaining focused and present. MacLeod's advice is good for anyone...whether you have CF or not.Link to Chris's Book: https://www.beatingtheodds.ca/For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comSponsored by  https://www.fordfund.org/globalcaringmonth  For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Canadian Author Chris MacLeod (who has CF)

Cystic Fibrosis Moms, who have never met, have a common bond: they know what a disease does to their child(ren), marriage and to their mental health. Laura Bonnell, Beth Vanstone and Patti Tweed all have one or more kids with the disease. The women came together to discuss all the challenges Moms (and Mums in Canada) face.  Their hope is to get Mom's talking to each other about all the challenges they face.  We will feature other Moms and clinical experts too.  We want your input so please shoot us an email: thebonnellfoundation@gmail.com   Thank you.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comSponsored by  https://www.fordfund.org/globalcaringmonth  The original music in this podcast is performed by Marc Cotterell, who happens to have Cystic Fibrosis.   You can find him on Instagram here: https://www.instagram.com/m4rccotterill/ Or here on twitter: https://twitter.com/MarcCotterillOr on YouTube here: https://studio.youtube.com/channel/UCxPDZTZt3hBuyomkxLFttNw/videos/upload?filter=%5B%5D&sort=%7B%22columnType%22%3A%22date%22%2C%22sortOrder%22%3A%22DESCENDING%22%7DThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Mums to Moms: talking CF from Canada to the U.S.

International Biophysics Corporation (IBC)  creates innovative medical devices.  Their devices improve treatment therapies and patient outcomes.  For cystic fibrosis patients IBC created the afflovest.  Prior to the pandemic Bonnell Foundation founder, Laura BonnellI tried on a vest at the North American CF Conference (NACFC) in Nashville. President and Ceo David Shockley was show parents, patients and doctors the vest.  Shockley is a wonderful, down to earth person who is commitment to making life better for people with a disease or condition.  IBC also makes cools things like ozone generators for the space shuttle.  They make heart pumps, surgical tubing and more. In this podcast we are delighted to tell you that you'll hear from Neal Smith, Director of Marketing and Education for International Biophysics. Thank you.International Biophysics Website: https://biophysicscorp.com/For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Neal Smith

Jordan Gillette and I met on twitter! Jordan is a long time WWJ Newsradio 950 listener.  Jordan started listening to WWJ when his Dad had it on in the car, and he continued to listen to it on his own.  Jordan heard my stories on WWJ, and he enjoyed all the WWJ personalities.  What he didn't know until he heard my Public Service Announcement (PSA) was that I had two daughters with cystic fibrosis.  Jordan is a truck driver and he has CF.  On his long trips he does his treatments in the truck.  He loves his girlfriend, but even he'll tell you, his trucks are tied for his love.  Jordan talks about how he makes his career and CF work!  For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Jordan Gillette, Trucker with CF

Forty seven year old Andy Lipman talks about what propelled him to write several books and start the CF Warrior Project.  You'll be inspired by Andy's story! Lipman is a positive role model, who defied all odds to become a college graduate, Olympic-torch bearer, runner, advocate, author, husband, and father. Dedicated to finding a cure for this genetic disease, Andy works tirelessly to raise awareness and funds for the terminal, invisible disease.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comReach and read about Andy Lipman: https://www.cfwarriorproject.orgAndy's family foundation: https://www.wishforwendy.orgThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Andy Lipman, Author

Representative Mike Mueller's older sister was diagnosed with cystic fibrosis (CF) at four years old. Growing up with a sister having CF gave Rep. Mueller a lot of compassion for people living life with a health challenge, and impacted his life of public service.  The two have a strong bond of love and understanding. It's a heartfelt story about the fear about what CF does to his sister, his fears, pushing through it. Rep. Mueller also is the co-author of the resolution to make May, CF Awareness month (Rep. Jim Ellison is the other).  Rep. Mueller is also the co-author, (along with Rep. Care Clemente and Rep.Jim Ellison) for the Rare Disease Advisory Council.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comTo contact Rep. Mueller: https://www.facebook.com/MichiganHouseRepublicans/The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Representative Mike Mueller and his sister Madeline Elmhirst (who has CF)

State Representative Jim Ellison is a long time friend to the Bonnell Foundation and it's founder, Laura Bonnell. Bonnell and Rep. Ellison met when she was a news reporter at WWJ and would call on Rep. Ellison for a comment, or she caught up with him on the road. Bonnell told Rep. Ellison about her Foundation, and the reason she started it was because her girls had the disease.  Rep. Ellison (and his wife Jodie) were all in, right away. Each year Rep. Ellison introduces a resolution to make May CF Awareness month.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comTo reach Rep. Jim Ellison: https://housedems.com/jim-ellison/The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/For more information on Ashley's organization, Breathe Bravely, check out: https://www.breathebravely.org/

State Representative Jim Ellison is committed to cystic fibrosis

Lili and her husband Jon had 4 children and they were content.  They bought a little farm in Ohio. Jon is a former Marine now working as a civilian to support his family. Then months after a tubal ligation, she found out she was pregnant!  Before baby #5 made her debut...Lili faced some serious health issues and then their daughter Bonnie was born with CF.  Hear their amazing story.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Child number 5 has CF: Lili and Jon in shock at first, then learn to live with CF.

Ashley Ballou-Bonnema was featured on CBS Sunday Morning, with Jane Pauley.  That's when I saw her, and screamed from the couch!  I backed up the program to get her name, and knew that I had to get in touch with her.  She shined so brightly in that moment, as she says on her Breathe Bravely website, she was "Giving voice to CF."Ashley's brother also had CF.  She describes how life was growing up with a brother who wasn't diagnosed for the first 7 years of his life, and how it affected her parents' marriage.  Ashley's brother was very sick and, as she'll tell you, it took a toll on her mental health as well.Having a chronic and fatal disease is no fun, but it has given her strength and purpose.  Ashley will tell us about her marriage to her high school sweetheart, a challenging health journey through her college years, and coming out on the other side with her foundation, Breathe Bravely.  You will also be screaming with joy after you hear her story; she's an amazing young woman.For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/For more information on Ashley's organization, Breathe Bravely, check out: https://www.breathebravely.org/

Breathe Bravely: Giving Voice to CF. Our guest Ashley Ballou-Bonnema

Dr. Paul Quinton's early discovery of the defect in CF that prevents chloride ions from crossing cells changed our CF world, and his work allowed us to get to where we are today. When he made his discovery he yelled, "Eureka!"  Dr. Quinton, now 76 years old has cystic fibrosis so this was personal. He actually diagnosed himself at the age of 19.  The Bonnell Foundation loves this man!For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Scientist, Poet, author, introducing Dr. Paul Quinton

For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/Find Project CF Spouse here: https://www.projectcfspouse.com/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Project CF Spouse

Thirty thousand people in the United States have cystic fibrosis, and 5 percent of those people are African Americans.  At least that's what the statistics show.  Michele and Terry Wright believe (and the Bonnell Foundation agrees) that the percentage is actually higher. The problem is that people who are African American aren't being properly diagnosed.  This is why the couple (Terry has CF) started The National Organization of African Americans with Cystic Fibrosis. Terry wasn't diagnosed with cystic fibrosis until he was 54 years old. Listen to their amazing journey.For more information on The Bonnell Foundation, find us at https://thebonnellfoundation.org/Find the National Association of African Americans with Cystic Fibrosis: https://noaacf.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/Tuskegee information about "testing" of African Americans:   https://www.cdc.gov/tuskegee/timeline.htmGraphic designer: https://cindyromano.com   

National Organization of African Americans with Cystic Fibrosis (NOAACF)

The Middle East CF association (MECFA) is working to make lives better for people cystic fibrosis. Christine Noke is the co-founder and CEO of MECFA. The stories you will hear in this podcast are sometimes gut wrenching and unimaginable. It will also inspire you to help raise awareness about CF everywhere, and make sure that someday everyone has a level playing field in healthcare. Noke says their goals are simple - to improve: Life expectancy and quality of life for CF patients regionally Access to CF Care Centers, Standards of Care Access to necessary drugs and equipment.Research and clinical trials in the region; Awareness about CF and Rare Disease in the region.  Let's help spread the word.For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/Find the Middle East Cystic Fibrosis Association here: https://www.mecfa.org/Vertex Pharma - the science of possibility.  https://www.vrtx.comThe original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusicThis podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

The Middle East CF Association

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Living With Cystic Fibrosis

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