Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Kelly Newton, who founded BP3 Underwear in 2019. Kelly founded BP3 as a result of her issues with bladder incontinence as she entered menopause. We know that many young women with Endometriosis, Interstitial cystitis, and even those in postpartum also have bladder issues, and Kelly soon realized that all of these women could use her knickers both for their periods and leaks and incontinence. Kelly also has a fascinating story about her endometriosis and I really had so much fun getting to know her. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.   Till next time, remember, you are not defined by endo!

Not Defined by Endo

S4E4 - Be Pee Free - A conversation with Kelly Newton, creator of leak-proof incontinence knickers

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph.D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating for herself and others and raising awareness about the disease. Endometriosis is such a poorly-funded and poorly-researched disease, and Jodie is working hard to change this by devoting her life to studying the impact of Endo. For her undergraduate and master's studies, she researched the stress levels of patients with endometriosis and was able to obtain statistically significant results in both studies. Apart from doing research on Endo, she also founded the all-inclusive charity called Endometriosis South Coast, supporting and educating those with endometriosis by running webinars and support groups.  Here is the link to Jodie's survey - https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.   Till next time, remember, you are not defined by endo!

S4E3 - Endometriosis: Under-funded & Under-researched - A conversation with Endometriosis South Coast Advocate and Research Student, Jodie Hughes

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Valentina Milanova, founder of Daye, a female health research and development company on a mission to bridge the gender gap in product innovation. They have created pain-relieving tampons infused with CBD which are not only effective but also sustainable. Join me today as we listen to the incredible journey of Daye and how they are raising the standards of women’s healthcare. If you want to know more or try out their products, please go to https://yourdaye.com. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.   Till next time, remember, you are not defined by endo!

S4E2 - A New Daye is Here - A conversation with CBD-infused tampon founder Valentina Milanova

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Anna Brightman, founder of UpCircle Beauty. UpCircle Beauty is a natural sustainable skincare company that repurposes would-be waste ingredients to create award-winning skincare and beauty products that are uplifting for the skin. Anyone that knows me knows how important sustainable living is to me, especially living with Endometriosis, a condition that is hugely affected by our hormones. So you can imagine my excitement when I discovered how UpCircle is making use of leftover coffee grounds, aromatic chai spices, and even fruit-stone waste to make good-for-you and good-for-the-environment skincare products. Join me today as we understand more of Anna’s story and get inspired by what she’s doing! If you want to know more or try our their products, please go to www.upcirclebeauty.com. There are so many awesome products on there, you’ll be spoilt for choice. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.   If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all.   Till next time, remember, you are not defined by endo!

S4E1 - UpCircle Beauty - A conversation with founder, Anna Brightman

Welcome to episode 7 and the final episode of Endo 101! What an amazing educational few weeks it has been! Today, we are going to discuss a case study on a woman who was diagnosed with Endometriosis and the treatment route that her doctors took, all hypothetical. We want you to know that even if you or someone you know has been diagnosed with Endometriosis, you do not remain without hope. There are many treatment approaches that your doctors can take, considering your individual case and you can regain your quality of life back. Most importantly, please never forget that you are not alone. There is an army of women, fellow sufferers, doctors, researchers and advocates fighting with you.  If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E7 (Endo 101) - Final Episode and a Case Study!

Welcome to episode 6 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  Today’s episode will be about the myths that have plagued this disease. There are so many inaccuracies we have always known to fly around when it comes to this disease. Myths such as Pregnancy cures endometriosis can do a lot more harm than good. Therefore, today Tom and I will be discussing some of these myths and Tom will be giving us an idea of the origins or the reasons why these untruths find their way into society. If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E6 (Endo 101) - Endometriosis Myths and How They Evolved

Welcome to episode 5 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  Last episode we discussed the surgical treatments for Endometriosis, and why the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. We also understood the different surgical approaches based on the kind of Endometriosis, whether an endometrioma, peritoneal endo or even deep infiltrating bowel endometriosis. Today, we want to talk about Endometriosis and Infertility. Up to 40-50% of women with Endometriosis do suffer from infertility or subfertility. So let’s talk about this and understand better how and why this happens. If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E5 (Endo 101) - Endometriosis and Fertility

Welcome to episode 4 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  The last episode we discussed the path from symptoms to diagnosis and really went into the different hormonal treatment options for Endometriosis. Today, we will be talking about surgical treatments for Endometriosis, and why the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. It is also very important to understand that there are many factors that can require your doctors to offer various other treatments other than surgery. This could depend on your situation, for example, the desire to have children which means your fertility has to be treated as a priority, the location of the disease, e.g. if it is Deep Infiltrating bowel disease that could be complex and potentially require a colostomy bag, and so on. One thing that is very important is to understand all your options, and why your doctor thinks a particular approach is the best one for you. So join us again on this episode as Tom breaks it all down for us! If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E4 (Endo 101) - Surgical Treatment of Endometriosis

Welcome to episode 3 of Endo 101. Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  Today, we are talking about the path from symptoms to diagnosis and treatment options for Endometriosis. Remember, that the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. However, there are many factors that can require your doctors to offer various other treatments such as birth control, hormonal treatment, pain management, pelvic therapy and so on. These options could depend on your situation, for example, the desire to have children which means your fertility has to be treated as priority, the location of the disease, e.g. if it is deep infiltrating bowel disease that could be complex and potentially require a colostomy bag, and so on. One thing that is very important is to understand all your options, and why your doctor thinks a particular approach is the best one for you. So join us on this episode as Tom breaks it all down for us! If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E3 (Endo 101) - Diagnosis and Treatments of Endometriosis

Welcome to episode 2 of Endo 101. Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  Today we are talking about the colours, the stages, and the sites where Endometriosis can be found.  If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E2 (Endo 101) - Colours, Stages and Sites of Endometriosis

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK.  In this first episode, we are asking, what is Endometriosis? How and why does it happen? If you enjoy this episode, I would love to know. Join me on Instagram and Facebook. You can also follow the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london, where Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate and subscribe to this podcast.  Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

S3E1 (Endo 101) - What is Endometriosis? Symptoms, Causes, Theory, and Pathophysiology

Today's episode is with Dr. Olajuwon Alabi. Dr. Juwon is a Consultant Gynaecologist and Obstetrician, the founder and Medical Director of Southshore Women’s and Children’s Hospital in Lagos Nigeria. Southshore is run both in Victoria Island and GRA Ikeja in Lagos. Dr. Juwon trained in Nigeria and also in Manchester and Leeds in the United Kingdom. He was trained in Minimal Access Surgery and developed interest in this subspecialty, and there got involved in a lot of Endometriosis cases. On his return to Nigeria, he realised the skills gap in laparoscopic surgery and decided in 2012 to start Southshore, which focuses predominantly on women’s health.One of their specialties is the treatment of fibroids and endometriosis, he is an excision specialist and today I am excited to talk about what it is like treating endometriosis patients in Nigeria. We discuss the challenges, and we receive golden advice from Dr. Juwon on dealing with this disease.Dr. Juwon has an Instagram account as well @drjuwonalabi for those who want to reach out to him.Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.Don't forget to share, rate and subscribe to this podcast.If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all.Till next time, remember, you are not defined by endo! Music:Underground Stars by Loxbeats https://spoti.fi/34tPBBOCreative Commons — Attribution 3.0 Unported — CC BY 3.0Free Download / Stream: https://bit.ly/underground-starsMusic promoted by Audio Library https://youtu.be/vpJDMD2EzkA

S2E18 - The Challenges of Treating Endometriosis in Nigeria, with Dr. Olajuwon Alabi

Today’s episode is with Lily Jane Avery, a 19-year Endometriosis warrior, and advocate. Lily was diagnosed with endometriosis at the very young age of 14, and she is one of the few who have had to carry this burden of a chronic disease at such a young age. Despite her early diagnosis, Lily was once told by her doctor to buy a colouring book to colour away her pain. This only made her fight even harder to be heard. Lily is not a victim, oh no! Instead, she has embarked on the very important cause of advocating for and educating both young and old about endometriosis and letting people know that the pain is not in their head. Lily started an Instagram account called @over.endo where she educates people on the various aspects of the disease. Please follow her and show her some love.Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories.Don't forget to share, rate and subscribe to this podcast.If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all.Till next time, remember, you are not defined by endo! Music:Underground Stars by Loxbeats https://spoti.fi/34tPBBOCreative Commons — Attribution 3.0 Unported — CC BY 3.0Free Download / Stream: https://bit.ly/underground-starsMusic promoted by Audio Library https://youtu.be/vpJDMD2EzkA

S2E17 -The Bittersweet Early Diagnosis of Endometriosis, with Lily Avery

Cycle charting. Is it the same as period tracking? We are speaking today with Melissa Buchan, an integrative health coach and a neo fertility advisor.  Melissa is the founder of Virtus Fertility Centre in Texas USA, and she provides her clients, many of whom are endometriosis and PCOS patients, with the tools to monitor and track their fertility cycles. Melissa provides cycle-targeted diagnostic testing to optimize fertility treatment plans. Melissa also developed a fertility app called Chart Neo which acts as a powerful tool for charting your cycle and assessing your health. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email on info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo! Intro MusicUnderground Stars by Loxbeats https://spoti.fi/34tPBBO Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/underground-stars Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

S2E16 - The Art.. or Science of Cycle Tracking with Melissa Buchan

“None of us alone can save the nation or the world. But each of us can make a positive difference if we commit ourselves to do so.” - Cornel WestToday's episode is with Amy, an amazing advocate for Endometriosis, and founder of 'In Sixteen Years of Endometriosis' Podcast, where she and her co-host Brittany give us incredibly uplifting accounts of their experiences dealing with Endometriosis for over 16 years. Amy is very active on social media, specifically Instagram, through her page ‘in16yearsofendo’, where she thoroughly educates the community on Endometriosis and the scientific research available and provides resources to support women with the disease. She also has a website https://insixteenyears.com/ where she has so many resources to educate and support women going through the disease.Amy and I support each other a lot and share our life experiences, and we thought it would be great to do a podcast episode together. We realised that something that we had both been thinking about is racial bias in healthcare as well as access, or the lack of it, to healthcare in lesser developed countries like Nigeria. We decided that this is something we both wanted to explore, research and talk about and here we are! Remember that you can follow me on instagram @notdefinedbyendo, and you can follow Amy @in16yearsofendo. This episode is airing on each of our podcasts, so kick off your shoes, get yourself a refreshing drink, and let’s have a listen! Music Underground Stars by Loxbeats https://spoti.fi/34tPBBO Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/underground-stars Music promoted by Audio Library https://youtu.be/vpJDMD2EzkA 

S2E15 - Racial Bias in Healthcare

Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease.

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Not Defined by Endo

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